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Its been 4 Years
I have not been on here in forever. I had to quit teaching. My life has been completely crazy. I tried finishing graduate school and couldn't make it. I cannot be around kids anymore because of the illness. I am just in a whirlwind of pain and illness. I barely go anywhere or do anything. I'm just existing at this point. I'm staying positive ( Read more... ) -
Surgery
10 days ago I had surgery to repair the damage in my mouth that the disease has done. It has been a VERY rough 10 days but I am progressing much better now. I am at the point again where I can eat little things, talk, and move around now. Not being able to get around a lot has really affected my already bad leg muscles. They are almost as sore as ( Read more... ) -
Another Surgery
Having Churg-Strauss has made my life an adjustment from the moment I was diagnosed and even before I was. I am 39 years old and over those 39 years I have had 25 surgeries to repair or supposedly make things easier or better for me. Next week I must undergo yet another one. The who upper inside of my mouth need reconstructed. The disease is ( Read more... ) -
Annoyed
I have not been feeling well at all lately and it has made me "snappy" at everything. Every little noise or habit or even the way someone looks at something has been on my nerves. I feel bad for everyone around me. I don't even like myself at this point. I hate that pain does this to me. I love to look on the bright side but Its hard when I am so ( Read more... ) -
Hard times but okay.....
Its been a rough couple of weeks. I was really sick and then we took a mini vacation to help us relax. We came back and then we had to deal with a very stressful family issue that we are still dealing with. The stress has made it really hard on my body but I am okay ( Read more... ) -
I'll be right back....
It has been a bad few days ( Read more... ) -
I want to give up
For the first time in a long time I want to give up on a doctor. She never listens. I have so much pain in my legs and so much going on. She is guilty of the whole but you look so great comments. She's a doctor she should know better. The last time I went in she didn't even examine me. What kind of a neurologist does that? She just said you look ( Read more... ) -
Its one thing when your friends leave you out its a whole other thing when family does....
Last year at this time we were in Texas for my sister's funeral. I had not been feeling good but I was there and even though it was horrid time in my life I was having a nice time visiting with my family....so I thought. The rest of my sisters and cousins decided to not to invite me to hang out or go out with them. They left me while they all went ( Read more... ) -
Yesterday...all my troubles seemed so far away........
Yesterday was a pretty good day. I love Hockey. I grew up playing it. I lived it and I still love it. The NHL team here had a celebration of the team and we were able to get autographs and meet some of the players old and new. One player I had been waiting to meet for 15 years. He was a member of many rival teams but I always respected him and ( Read more... ) -
How are you feeling?
How are you feeling? I hate that question. People ask it, but they truly don't want to know. They want an I'm good, okay, etc.... if you say I'm bad they don't want you to elaborate. I always go through this process in my head when I am asked this question. 1. How do I answer? 2. Do I elaborate? 3. How many details should I give? The simplest ( Read more... )