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Had to post this... (Blog Post About Facial Pain & Disability)
Posted by kathy taylor website: www.withgreatmercy.com
Because loss is such huge subject, I want to write about it for a while. Today I'll try to tackle one of it's sub-topics: disability. It's a topic I can really get fired up about.
Disability benefits are necessary for some people with facial pain. This is true for people with trigeminal ( Read more... ) -
Would Love Friends To Watch This Feature On Trigeminal Neuralgia - Only 7 Minutes Long
It's going to be aired on TV! Finally there is something... *tears*
My first brain surgery was Microvascular Decompression, which is explained in this video. Mine failed due to being atypical(constant pain). But, I'm still hopeful about my second brain surgery because I'm still healing. book, youtube, atypical trigeminal neuralgia, dysesthesia, tn2, neurosurgery, craniotomy trigeminal nerve resection, pain, tna, craniotomy microvascular decompression, cranial nerve disorder awarenessProof That I'm Still Living
I have stolen a few pictures from my friends, giving proof of three out of the four outings I have participated in this year.
( Read more... )Longest Six Months Of My Life
It's been six months since the second neurosurgery. The dysesthesia pain got worse than it had been in early January, starting the evening of January 17th, but it seems to have calmed down some. It is still dreadful, but I am very rarely getting attacks that make me feel as if I can't move my head. I have felt like the left side of my head has ( Read more... )Status
The "new pain" that started two Sundays ago is kicking my ass! It's crushing the left side of my head, my temple, my forehead and my cheek-bone. Sometimes I get to the point where I can't move my head at all.Hello Outside World
It may seem as if I've abandoned this here journal, but I absolutely have not. Since my life is revolving around healing from having neurosurgery multiple times this year, that is the most popular subject of my entries. Secondly, I write back and forth to my doctors and nurses and will copy the correspondence here in my journal. I also copy ( Read more... )Lost In Time
Still alive, but still very sick. Oct 1st surgery = failure. Going back to neurosurgeon in Pittsburgh this coming week. Something is very wrong. Lots of pain, lots of sadness. Much love to the friends who have taken such wonderful care of me. I don't know where I'd be without you. XOXODistraction!!!
As of late I have to keep myself constantly distracted. I usually need the help of others to entertain me. Since my nerve was partially cut, it is trying to make new connections. These "temporary" connections are part of the reason for all the pain I'm having now. The more I concentrate on the pain, the better the chance of the connections ( Read more... )I Haven't Posted Much Here...
But, I sure do post a lot of crap in facebook... but I'll throw some stuff in here ( Read more... )Writers Block Lifting?
I think my writers block is starting to lift. I bought a book from the TN Association entitled "End The Pain". It's a collection of poems written by Trigeminal Neuralgia sufferers. This book will rip your heart out, I don't care who you are :-P But, seriously, it really is good. I've only read about eight of the poems thus far. But, I got ( Read more... )
