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Had to post this... (Blog Post About Facial Pain & Disability)
Posted by kathy taylor website: www.withgreatmercy.com
Because loss is such huge subject, I want to write about it for a while. Today I'll try to tackle one of it's sub-topics: disability. It's a topic I can really get fired up about.
Disability benefits are necessary for some people with facial pain. This is true for people with trigeminal ( Read more... ) -
Please Help My Friend Get The Surgery She Needs!!
We are raising money for my friend Carolyn, who has atypical trigeminal neuralgia, a rare, chronic type of severe facial nerve pain. She has had eight unsuccessful brain surgeries so far, but a very rare brain surgery, Descending Tractotomy of the Trigeminal Nerve, has been offered that we hope will give her some relief from the pain. She badly ( Read more... ) -
Video Interview With A Trigeminal Neuralgia Patient
Trigeminal Neuralgia - "The Suicide Disease"
http://www.youtube.com/watch?v=88P-97H7qdg
**Edit - I just wanted to mention that I had an "MVD" aka "Microvascular Decompression" in June 2009. It failed, as it often does with atypical patients. But, I'm still waiting for the results of my July 2009 neurosurgery, "Partial Sensory ( Read more... ) -
My Friend, Brent's Facebook Status...
Brent Weichers Trigeminal Neuralgia, sometimes called "The Suicide Disease" and often described as the worst pain known to man. Awareness is needed! Please, if you have TN or know someone affected by it, or if you care for someone with it, Copy and Paste this to your wall. TN Family UNITE! We cannot suffer in silence anymore. This ( Read more... ) -
Would Love Friends To Watch This Feature On Trigeminal Neuralgia - Only 7 Minutes Long
It's going to be aired on TV! Finally there is something... *tears*
My first brain surgery was Microvascular Decompression, which is explained in this video. Mine failed due to being atypical(constant pain). But, I'm still hopeful about my second brain surgery because I'm still healing. book, youtube, atypical trigeminal neuralgia, dysesthesia, tn2, neurosurgery, craniotomy trigeminal nerve resection, pain, tna, craniotomy microvascular decompression, cranial nerve disorder awarenessProof That I'm Still Living
I have stolen a few pictures from my friends, giving proof of three out of the four outings I have participated in this year.
( Read more... )Longest Six Months Of My Life
It's been six months since the second neurosurgery. The dysesthesia pain got worse than it had been in early January, starting the evening of January 17th, but it seems to have calmed down some. It is still dreadful, but I am very rarely getting attacks that make me feel as if I can't move my head. I have felt like the left side of my head has ( Read more... )Status
The "new pain" that started two Sundays ago is kicking my ass! It's crushing the left side of my head, my temple, my forehead and my cheek-bone. Sometimes I get to the point where I can't move my head at all.
