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[limenal]

New lesion(s). In my brain. Less than three of them. They were there on my December MRI results, but I just found out about them today. I don't feel like doing all the exposition right now, but the bottom line is that the study protocol for the drug study I am in says that I have to be offered MS therapy now. So, I've been offered Avonex - self-

Comments

[grr_rob]

Yikes. Yikes. Yikes.

(I know, I know. I never write, and then when I do, I'm all with the yiking.) (Like viking. But more histrionic.)

I wonder about you and teh dizzy, today, and appreciate you updating with the lesion news. Are you wanting advice or suggestions, right now, or should I just hold out the (very butch, but in a post-modern yet not obnoxiously hipster -- because, dude! I'm over 40! Hipster is not such a good look! -- style) pom-poms?

(And I apologize for the hyper use of the parantheses.) (But can't seem to stop...)

Have you met my LJ friend, dodgingwndshlds? He's a big perv with a big heart and a snarky sense of humor, who, by the way, has MS. Just in case you need a big perv, etc., who has been through MS-related struggles. He's having a rough time, now, but is a spiffy guy.

[limenal]

Another much-belated response to a much-appreciated comment! I have not met dodgingwndshlds - I will check him out. Thanks for your thoughts, and in general, I always appreciate advice or suggestions if you have them! But if you don't, I still appreciate the pom-poms.

[wearemany]

I love you for bringing it all back to Lucille 2 (Lucille II?) because if there are two words associated in my mind it is Lucille (II/2) and vertigo

[limenal]

Hi, remember when you left this comment eons ago?

No, I don't think you have told me how you feel about patient advocates, but I respect your views. I can definitely get on board with the idea, and I am going to try and bring someone with me next time I'm going to actually talk to a doctor. And thank you - I may take you up on your offer!

Keep the unsolicited advice coming. I never feel comfortable asking for advice, or it doesn't occur to me, so I need people like you in my life if I'm going to get any. So, thanks for that and for always being there with the supportive comments!

In a TOTALLY unrelated story, is J still looking for a legal assistant type of job at a non-profit? Because a certain non-profit is hiring 3 of them.

[wearemany]

Yes, I am always available for phone action. ;)

And J is TOTALLY still looking for a job. Email details? The other Big Gay Non-Profit is either reallllllly slow in doing a second round (always possible) or not interested. Hard to tell.

[ex_chose]

hugshugshugshugshugs

[limenal]

thankyouthankyouthankyou - belatedly!!!

[snakeyesboy]

Well so long as Lucille 2 is somehow associated, it can't be that bad can it? I like that you can have a sense of humor about the whole thing...it's entirely necessary.

Well I guess I can say that injecting once a week is just a part of my life...it's so so so fun. Really, it's not that bad after a while, and at this point I don't even think about them. My injections are not followed by profound sadness, more like profound desire to start a barroom fight or overturn a table, so I can't entirely relate!

Ha ha I sure think I'm funny. In all seriousness, hugs.

oh how grand!

[limenal]

You are funny, it's not just you thinking that. Thanks for the perspective on self-injecting, and for the support hugs!

who will be your Buster?

[raybear]

I wish there was a Very Special Episode of House I could referenece right now....or even a non-special one.

I think its good you don't have to decide right away, you can do more research and let all the information sink in for processing. It might be good to give yourself a deadline for yourself to have an answer, so that the "time to think it over" doesn't become "time I can pretend it isn't happening". (Not that either one of us are people who do that....)

And you know you can find me most evenings on google chat!