A correspondent from the Times Leader (our area's largest local newspaper) interviewed my mom and I yesterday concerning CFS, Fibromyalgia, and my mom's new book, "I Have CFS But I Don't Look Sick". The article is in the paper today, AND IT MADE THE FRONT PAGE!
( Read more... )

Hello everyone!

I can't quite remember if I ever posted here before, but I do lurk quite often and read all the posts. Instead of venting or talking about a bad day, I have come with good news! My mother's first book, I Have CFS But I Don't Look Sick has just come out!

There are a lot of CFS books out there that talk about diets, medicine ( Read more... )

Reeves Is Out -- New Directions for CDC's Chronic Fatigue Syndrome Research?

This is such great news. Maybe now the CDC can throw out the BPS model of Chronic Fatigue Syndrome and we can all stop being treated like middle-class saps with a lazy attitude and start being treated like people with a genuine biological condition.

More info here: Dr. ( Read more... )

Hi all,

I have suffered with M.E for the last year, and since I've been aware of it I have tried to find a forum where I can post my daily rantings and questions about the illness. I've not found one yet, so I decided to set one up.

You can find it here; mecfssupport.freeforums.org/

I only set it up tonight but it would be really nice if you could ( Read more... )

Hi everyone, my name's Anna, I'm 22, Poland, and pretty sure I have CFIDS. Mild CFIDS. From reading you guys I think I am very lucky, as I go to school and somehow make it all work. Still, it's not easy.

My symptoms list:

-headaches every day

-dry throat

-chronic caughing

-chronic low grade fever

-often getting sick (and I do dress warmly)

- ( Read more... )

Stomach virus 'could trigger ME'

US researchers have produced compelling evidence linking chronic fatigue syndrome to a stomach virus.

The researchers examined 165 patients with chronic fatigue syndrome - also known as ME (myalgic encephalitis) - and long-standing gut complaints.
More than 80% of samples were infected with an enterovirus, ( Read more... )

Hey everybody ( Read more... )

I was just wondering.. I feel I am getting worse. I started off able to go out once or so a week, maybe once time for 2 horus & other half hour patches during the week. Now I am pretty much housebound (go out for 10 mins maybe once a month). Of course, I am worried I will get to the point of bed bound & deteriorate further - even though all I ( Read more... )