Comments | cfids_me: New girl on board!

galoisgirl in cfids_me

New girl on board!

Dec 11, 2007 21:26

Hi everyone, my name's Anna, I'm 22, Poland, and pretty sure I have CFIDS. Mild CFIDS. From reading you guys I think I am very lucky, as I go to school and somehow make it all work. Still, it's not easy.

My symptoms list:

-headaches every day

-dry throat

-chronic caughing

-chronic low grade fever

-often getting sick (and I do dress warmly)

- ( Read more... )

doctor visits, cfs, studying

Comments 4

belle_marmotte December 12 2007, 00:17:07 UTC

Hi there I started with CFIDS/ME after getting mononucleosis too. That was 21 years ago and I am still affected. It seems like you are doing a lot of the right things, by resting and cutting down on your hours of study and classes.
I hope you start to feel better soon.

It must be frustrating that all the sites about this illness are in English, I wonder, if you felt able to start the first ever Polish CFIDS information site? There must be other people in your country who have similar experiences and can't find help too.

cfids_searcher December 12 2007, 01:50:33 UTC

Welcome! I'm having to skim over your entry for now, and when I have more time, I'll read it more carefully (I've go to get the children to bed); just wanted to give you a big welcome!

Searcher

woolly_socks December 12 2007, 05:21:07 UTC

Hi Anna, and welcome!

I think it's great that you are being pro-active and finding out as much as you can about CFS. It's unfortunate that there's not much in the way of local resources for you - hooray for the internet! It took me a very long time to get a diagnosis, and even longer to properly slow down and allow myself to rest. It's great that you are taking the time to do this early.

Unfortunately it seems that there are doctors who don't understand in every country. If you feel disrespected and not listened to, keep looking for someone who will take you seriously.

The depression diagnosis is common. But any doctor worth their salt will hopefully see that any signs you may be showing of feeling down can just be the effect of how frustrating it is being sick all the time!

good luck.

obscenely December 16 2007, 01:40:26 UTC

Hey, welcome :) You came to a good place.

As woolly socks said above there are docs in every country that don't understand. ( I am from Aus, I had my face laughed in ). The internet is great.. I was watching a youtube video the other day made up by Jodi, the creator & maintainter of http://www.ahummingbirdsguide.com (good site).. I'll try & find the youtube link now, it went through the various ways in which a doc can diagnose ME, and my Doc used all of them & a few more...

http://www.youtube.com/watch?v=xvsuqiH1pWc

In fact I might jsut post that on here now.. though I wasn't all that fond of something to do with the end & I can't remember why.. but the content is very accurate.

Goodluck.. maybe show that to the next doc you see.