I think he's wrong

Aug 01, 2009 18:21

My rheumatologist.

I think this is more than fibro.

My flares have a pattern. Mouth sores. Red slightly raised areas on my cheeks. Extreme fatigue, followed by swollen painful joints, headaches. And my hair is falling out so easily - I thought when I got it cut, that the dead ends and tangles would take care of it, but it doesn't matter. Do I think I have fibro? Yes. But there's more to this. Seriously, what the FUCK. I'm going to ask him to rerun tests when I see him Friday. I am so tired and achey and feeling not well right now that I just want to curl up and cry. I'm looking forward to my surgery because when the pain is managed for that, it might be managed for this.

Went to my brother's midday with the kids for my nephew's 10th birthday - was stuck on 495 for an hour, to go 20 miles - of course, a sunny Saturday + the main road to Hampton Beach = wall to wall traffic. Kelsey was nice enough to drive home. Simply wiped out, from doing nothing. I am so completely miserable right now.

Last night her party went well - about 16 kids showed up, and although the rain stopped for the most part, they stayed in, and played Wii Sports and Rock Band. They were awesome about cleaning up after themselves - I often think that the kids are both much younger and much more mature than I was at their age - it's a weird combination.

Got a copy of Rosetta Stone for Dutch from my brother, who bought it before he went to Holland with my mom that time - this is going to be my pet project. I'm going to learn Dutch. Starting now, because it might distract.

family, exhaustion, rheumatologist, dutch, joint pain, fibromyalgia, kelsey, headache

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