It's hard to explain how delayed fatigue works, but this is the reason why those of us with fibromyalgia and chronic fatigue/ME have a hard time getting disability, why our friends sometimes think that we've somehow recovered from whatever was wrong with us.  They see us acting normally, but they miss how we pay for things later.  When you are ( Read more... )

Tomorrow is going to be a little different. Lately I've been 'exploring my anger' as I call it, and I'm going to start up something called "Whining Wednesdays" where I (and others) get to voice my aggravations. The caveat? One must also channel that anger in a meaningful direction. Anger with Purpose ( Read more... )

Months of anticipation, hope, wasted. I wanted so badly for this rheumatology appointment to go well. It seemed simple enough. I wanted an MRI of my hands, which would put to rest once and for all whether or not I have rheumatoid arthritis. And if all of my symptoms are simply from the fibromyalgia, I want to be treated by a doctor who is ( Read more... )

So far, I'm only critical of hypocrites, and I already admit to my own bouts of hypocrisy without even a tinge of remorse. I compartmentalize, no one ever said I was consistent. Heck, my opinion even in this post might change tomorrow, who knows? Lately I'm made more and more aware that the more a person criticizes others, the more they are ( Read more... )

Check out this episode on my podcast "E4. 4 - Snobbery & Fatigue":
http://podOmatic.com/r/4G4tj

My volunteer place needs me to work two shifts, and they are longer than my normal 3 hours, AND my printer broke AND I'm exhausted. Gonna try for some winning writing somehow on Wednesday evening if I don't simply collapse in exhaustion.

Up at 0730, played FB with my coffee and pastry. Then down again. Then up again, looked at potential folding chairs for my Sunday tea parties and read my email while playing on Facebook. Then down again. HIPS called sometime during my second nap. I hadn't heard from them the evening before and thought we weren't going to transport the shelves ( Read more... )

Having to take a break today, in a lot of pain. Tried to run some errands with AgtOrange, but didn't get far. Had to return home for a nap. Apparently I can sleep un-medicated, though not well or for long. Will have to complete tasks tomorrow. Woke up feeling worse, and bored. Went to the bar to hang out for a little while, but the seats are ( Read more... )

Thinking of heading out to KT's memorial in a bit, so I'm doing this early. It's gonna really cut into my goals for today, but in the end which is more important?

Comprehensive List of Tasks

• strength exercises = done
  
• chore = rolled coins since my change cup was overflowing with pennies, AgtOrange said he'd help a bit with laundry
  
• groom = basic, ( Read more... )

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Today was one of those awful days where you just want to crawl back into bed and throw the covers over you. I got up in severe pain, after several pain-free days, and immediately visited the Motrin. (In fact, the joint pain was so bad I poked my boyfriend awake just to open the bottle so I could get to the ibuprofen ( Read more... )