GOD IS SOME KIND OF A SON OF A BITCH

Mar 31, 2010 11:00

God made a beautiful girl AND gave her a genetic disorder speeding her death unless we could find the right donor: for that girl to survive someone had to die and thats why when i see God i'm going to spit in his eye.

wtf

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belovedrooster April 7 2010, 06:35:05 UTC
I just read the last month of her blog.

I cried.

She took the challenge of her life and she ran with it. Had she been born without CF, would it have been as amazing? Her entire life has been lived through the lens of each day potentially being one of the last. And she was never allowed to forget it. It put a spin on everything and she utilized it to spread God's love in the world. She did GOOD work here. She did good things.

Life and death is transition. Eva is still here without being here.
What was it about her life that so captivated and inspired you? How can you use that to carry her legacy on in your life? Or create your own?

I love you.
I hurt with you.

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the_shortcake April 7 2010, 16:03:04 UTC
i don't know if she would have been amazing w/o cf, i talked with gary about this allot that maybe when you don't have trivial daily bs to get caught up in even if it is a because of a terrible illness its easier to reach some kind of enlightenment. like her illness was a terrible allegory for a monastery, she had this thing her whole life and she never talked about having selfish depression or paranoia or other mental/emotional bs (i find that i have decided my mental emotional bs is invalid/not "real" like other problems that others have, lol, because i'm so nice to me), she just pushed through. i recognize how hard that is. i just was/felt tuned into her, that week before she died and it was churning in me, i thought of her mum and sisters. there are not many organ doners and its foolish, if you die you don't need your guts anymore, most people just wont think about it because its uncomfortable. i already have the organ doner sticker, so does gary and we know that organ donation is the goal if we unexpectedly die or if the kids ( ... )

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belovedrooster April 7 2010, 16:16:21 UTC
Yeah ( ... )

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the_shortcake April 7 2010, 16:44:51 UTC
well, yeah, she had depressive *moments* and paranoid *moments*. she was not consumed by them and i sometimes am and i don't have an intensely painful terminal illness. i'm not as upset now as i was, i was very angry. i can't imagine being in a position where if i was going to live some one else would have to die, and they'd have to die healthy and have my blood type. that is frustrating and sad. its unfair.

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