Well ... Video eeg and dumb rant

Sep 17, 2013 11:47

My brain is merely "misfiring" and the times I pushed the Event button during the eeg there was no abnormal brain activity ( Read more... )

Leave a comment

Comments 9

nyxalinth September 17 2013, 17:57:55 UTC
I'm sorry to hear that they were not very helpful *hugs*

Reply

soliloquy September 19 2013, 00:47:43 UTC
You know, I always get a laugh out of your icon, so that alone cheers me up. Hugs are a great bonus, too!
Thank you! *hugs* :-)

Reply


lady_curmudgeon September 17 2013, 18:30:06 UTC
Oh honey! I know it's frustrating, but please try not to give up trying to figure out what's wrong! There must be answers out there for you--they just need to be figured out and found...somehow...

The twitching and other things have got to be symptoms of something, dammit! You're not faking these things--they are real and need to be figured out and treated properly. I believe this with all my heart.

I wish I could point you in the right direction to get this all figured out and fixed. I love you and care about you and don't like seeing you go through all of this!! :(

I wish you much love and peace, friend. Hang in there!!

(((((big comforting hugs)))))

Reply

soliloquy September 19 2013, 00:49:32 UTC
Thank you. I know you've seen some of this stuff in person, so I will definitely not give up. *hugs* <3

Reply


j_reloaded September 17 2013, 23:00:13 UTC
(((((((((HUG)))))))))))

I really feel for you my friend. I've been there, oh how I've been there.

I know you're probably not in the mood for the silver lining right now, but to me the good news is that you're not having seizures! You don't have epilepsy!

But that doesn't mean it's nothing. Whether the cause be psychiatric or otherwise, your concern is completely valid and justified. I wish there was something comforting I could say, aside from "I understand", but I think I really do. I know I'm too caught up in my own mess right now, and don't want to parrot back the unhelpful talk I have received from those trying to make me feel better about things. The truth is, the situation just fucking sucks. You, however, are pretty damn awesome, no matter what type of illness(es) you may be suffering from. That's how I feel anyway <3

Reply

soliloquy September 19 2013, 00:50:55 UTC
*Hugs* I'm sorry you've had to deal with this stuff, too. Thank you for being there for me throughout the years. You mean so much to me!

I really needed the dose of optimism, too. <3

Reply


brightlotusmoon September 18 2013, 02:33:37 UTC
Eh? Dude, my EEG showed no abnormal brain activity. My MRI, on the other hand, showed TONS. EEGs cannot be trusted alone.

I think you need another doctor.

Reply

soliloquy September 19 2013, 00:54:48 UTC
Out of anyone else I know online, you are one of the few who know what this path is like. I really appreciate your support and help through all of this.

I am giving my doctor a list of questions that we didn't get to ask, and if she can't or won't answer them we will have to move on to someone else.

Have you ever felt like you were wasting people's time, or doctor shopping, or like a hypochondriac for having all of these issues? I feel all of those, and was just wondering if I'm alone or if someone else has felt it, too.

*gentlest of hugs*

Reply

brightlotusmoon September 19 2013, 00:58:32 UTC
I sometimes have felt like I was wasting doctors' time, yeah. Other people have called me hypochondriac just because they didn't want to believe I have so many issues. :p

Reply


Leave a comment

Up