Parenthood - the good and the bad

[sammywol]

These last few days I have been putting off writing. I have been feeling very emotional and don't want to get histrionic. Motherhood has been busy lately and rather dominating my inner landscape. First the good bits:

Comments

[lilachigh]

So sorry to hear about the arthhritis problem. Hugs for everyone and prayers.

[sammywol]

Thanks love! *passes tea*

[tx_cronopio]

Oh, honey. Well, first off, that was one site...may not all be completely accurate, or her case may go better than they expect. Still, no wonder you're upset!

[sammywol]

Yes it is one site and may not be all that up to date but it is the only one that deals with the specifically Irish situation for treatment, support, costs and the like and so that is probably what we will be facing into, antediluvian or not. Am gearing up to be the 'polite mother who just won't go away'. That's a useful persona for this sort of thing.

[doc_mystery]

This must be rough on all of you, especially DD. All my best to all of you this Easter weekend

[sammywol]

Thanks so much for this. I was rather hoping you were listening. I think some of the problems we will face though are simple numbers because Ireland is so damn small. There are no kids hospitals outside of Dublin and any specialists she sees won't have seen all that many cases - her GP, who is great, has never seen a kid with JA under 10! - and if we want a multi-disciplinary approach it will be mostly up to us to create one and, of course, pay for it, in spite of having medical insurance as it won't cover physio etc.. Luckily her school have a good record of support and are receptive to input on things like this so there should be back up there. Crosses fingers. At least DD is a very active child so keeping her exercising shouldn't be a problem.

[a_d_medievalist]

Oh, damn. {{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}. See, stuff like this makes what I posted on my LJ yesterday seem run-of-the-mill to me. Dealing with worrying about kids is very hard.

I'm going to go drink tea on your behalf.

[sammywol]

Mercifully DD is oblivious. Although she has told every person who so much as glanced at her in the street that she had blood taken on Thursday

Proxy tea drinking is acceptable :)

[gillo]

::Sending you buckets of tea::

That is incredibly worrying for you. Bear in mind that you've been reading about the worst case scenario, and things will not necessarily develop to that extreme.

It's a parent's life to hassle and whine at systems, wherever and whatever they are. You'll cope admirably, I know, and she's lucky to have you as a mum. And this is a very good place to vent when you don't feel you are managing.

{{hugs}}

[sammywol]

Oh dear God no. Worse case scenario is MUCH worse! - not counting the masked leukemia angle (lalalala! I can't hear you!)

otoh we have two good doctors involved already, who actually listen to her and believe her when she says she is in pain even when there's no external evidence. Now if only we can find a way to manage the pain I would be 90% happier about the whole mess.