I don't think words can convey how sad and sick this makes me feel. That kid is surrounded by idiots who have filled his head with lies, and now he's going to die. I actually have a physical urge to scream. Damn.

Went up to Moffitt this morning for a consultation with the bone marrow transplant people. Sokol didn't think Jaime'd need it, but since Burkitts moves so fast (the doctor we spoke to in the bone marrow clinic said there is no known cancer that grows more quickly than Burkitts Lymphoma. Can we say, "Holy shit"?), he thought it prudent to get to ( Read more... )

Jaime and I have both been invited by our respective departments to Graduate Recruitment Day at UF. :D I don't think I can put into words how excited I am. Guess this means I should buy some professional clothes that actually fit me, huh ( Read more... )

Last night, I became aware that I was dreaming. It was the weirdest thing. I know that happens to a lot of people, but I'd never experienced it before. Typically, my dreams are very vivid and surreal, and I just get pushed along until I wake up. This time, though, I caught on. You know how there are always things that seem logical while you're ( Read more... )

WE GET TO GO HOME THIS EVENING.

I'm going to take some goddamn Sudafed and play Persona 4 into the night with Jaime by my side. It will be awesome.

And his CT scan showed no signs of cancer. I love today.

Why does everyone want to stick things in his brain? Ommaya reservoir? For MORE Depocyt?! FUCK YOU. And a shunt, oh, a shunt, for what's probably a temporary condition and should just be treated with some fluid draining and no surgery that involves his goddamn brain. I wish they would let us know before sending in more random neurologists and ( Read more... )

On my way to grab lunch just now, Serena told me they didn't find anything in the fluid. Meaning the lymphoma has NOT spread into his brain. Fuck. YES.

... The chick in front of me in line at the grill asked for just a large box of crispy fries. As the guy was serving it up, she hollered, "Are they crispy?!" Yes, ma'am. *eyeroll*

Many thanks to those who e-mailed, commented, and chatted with me. Every little note really helps. :)

Going in to this morning, Jaime and I had a working theory about what was going on with him derived from an article in Blood about patients undergoing basically the same treatment as him - Hyper CVAD with prophylactic intrathecal Depocyt. What ( Read more... )

Jaime writes hilarious e-mails to his oncologist. I may ask him for permission at some point to post the one he's sending off now, or just encourage him to post it on his livejournal. It really is quite good. It's also good in that the information it contains could prove rather helpful to those trying to diagnose him at the moment. Yeah, yeah, we' ( Read more... )