Help needed! I've been working on a project around self-care for the severely sick folk like me. Most self-care says stuff like "Take a walk, go see a movie, go to a restaurant, take a swim" or similar stuff - none of which I can do as a bedridden person... so I've been making cards with things I *can* do ( Read more... )

Hanging out for the day I can ask the internets whether 6-way individually switched power boards with 5m cords (and preferably, wide-spacing of plugs) exist, rather than slogging through fifty gazillion google searches ...

On the other hand if you want a 6 way individually switched powerboard or a 6 way powerboard with a 5m lead and wide spacing ( Read more... )

Part of what's hard about getting this sick for the second time is that every time I go through getting new assistive technology or using a new way of doing things, it's something I've done before. It feels like having to deal with two sets of emotions - the set that's happening now but also in a way the set that I went through in the early 2000's ( Read more... )

I'm having a crappy day so I thought I'd share songs for crappy days with you. Unless specified, these are links to YouTube videos so you can enjoy them yourself. They're songs I listen to when I'm feeling particularly hopeless, so they're probably a weird collection but they make me feel better...

Amy's Song, by Cold February (link to my dropbox ( Read more... )

Dear Dreamers,

Just getting my records in order for doctor visit tomorrow and it turns out I have had fifteen worse-than-average days in a row[*] ... no wonder I am feeling down!! In other ways of looking at the same data, it's halfway through February and I've only had 14 days that *weren't* worse-than-average since Christmas Day.

( Read more... )

Thank you very much to everybody for glorious 40th birthday messages and emails and phone calls and such ( Read more... )

Four year old-ish kid holding Mum's hand, visibly shy but wanting to ask me something. We're waiting for the pedestrian lights to cross so I said "hi". She's looking with big eyes at my large reclining power wheelchair, as most kids do ( Read more... )

I have been learning Urdu since about the middle of November ( Read more... )

Bag not found - have assumed it's a lost cause and won't be ( Read more... )

Lost bag searched for but not found. Reported to police lost&found and spoke to a bunch of shopkeepers but I'm thinking if it hasn't turned up it's not very likely to now ...

Also realised that all the Christmas cards i'd drawn were in there, as well as my fancy $100 bluetooth earset DAMMIT.

This entry was originally posted at http://jeshyr. ( Read more... )