::hugs:: I'm really sorry to hear that. A friend of mine has CF and one day, someone asked her how it made her live her life, if she always thought about dying. She said, "When I was born, I was expected to live until I was 5. Now I'm 20 and I'm expected to die by the time I'm 37. Who knows where we'll be by then". She still has a wonderful, amazing life and she has so much hope for the future, as she should.
So, it can be a scary disease, but I know it is one of the ones that people have the MOST hope for, because such amazing strides have been made in its treatments. Stay positive, and I'll keep you and the little guy in my thoughts.
Thank you so much for your words of optimism and support. Like I said, I don't know much about it, but I knew that, as you said, there's been lots of advancements recently.
It's hard to be positive in light of the news, but at least there is some hope and good news with CF. Since Boomer started slinging his weight and name around, I know there's been a lot of good things done.
I'm so sorry to hear that. :( And nope, CF isn't good at all...it's fatal. :( I know that some CF patients...for lack of a better term...can live until their late teens-early 20s. I saw something on a CF patient a year or so ago and she was well into her mid-20s before she died. I know that doesn't make it any easier. :( It's just too bad that most carriers of the CF gene(??) don't know they carry it, until they have children. Or so I've always read. :( My thoughts and prayers are with you and the rest of your family.
I'm not aware if my cousin's husband knew it ran in his family -- I know we weren't aware we had it in ours.
Very early in the pregnancy, they saw a spot on the ultrasound that could have signified three different things, and one of the things it could have signified was CF, so this wasn't a complete surprise.
They kept an eye on it and did frequent ultrasounds, and the spot disappeared a month or so before the birth, so everyone -- doctors included -- believed it wasn't anything significant. Unfortunately, it was.
So it's not a complete surprise, but still, it's very difficult to handle.
I'm sure she will, and I'll be sure to pass along the advice. She's got a large, loving family, and we'll do everything we can for them, and she's very strong in her faith, as is her husband. I know the whole family will get through this, and we'll give the little guy the best life he can possibly have.
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So, it can be a scary disease, but I know it is one of the ones that people have the MOST hope for, because such amazing strides have been made in its treatments. Stay positive, and I'll keep you and the little guy in my thoughts.
The American Cystic Fibrosis site is here:
http://www.cff.org/home/
Leelee
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It's not good, but it could be worse.
Thanks for the link, I want to go read up on it.
*hugs*
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http://www.esiason.org/
*crossing fingers and hugs you tightly*
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I'll definitely have to check out the site -- the more resources I can find, the better, y'know?
*hugs*
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My thoughts and prayers are with you and the rest of your family.
*HUGS*
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I'm not aware if my cousin's husband knew it ran in his family -- I know we weren't aware we had it in ours.
Very early in the pregnancy, they saw a spot on the ultrasound that could have signified three different things, and one of the things it could have signified was CF, so this wasn't a complete surprise.
They kept an eye on it and did frequent ultrasounds, and the spot disappeared a month or so before the birth, so everyone -- doctors included -- believed it wasn't anything significant. Unfortunately, it was.
So it's not a complete surprise, but still, it's very difficult to handle.
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I hope your couin finds a support group once the initial pain wears off. It can be very helpful.
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I'm sure she will, and I'll be sure to pass along the advice. She's got a large, loving family, and we'll do everything we can for them, and she's very strong in her faith, as is her husband. I know the whole family will get through this, and we'll give the little guy the best life he can possibly have.
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