saturday morning, who's gonna play with me?

Feb 23, 2008 11:19

So in the Search For Military School or At Least Other Options which took place yeterday afternoon (you thought I was kidding, didn't you? Hell no.) we did find out a few things:

  • There are actually Autism With A Side Of Blindness Experts out there. They're based out of Portland. They're holding a seminar in Yakima this summer. I'm so there, ( Read more... )

kid with no words, life with talphinia

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Comments 29

heathrow February 23 2008, 21:26:34 UTC
The sheer amount of medical-related acronyms and therapies you all wrangle impresses me.

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tallin February 23 2008, 22:00:51 UTC
God forbid I ever have to combine medical terminology and acronyms from my industry in a single message/post/other text entity (... after the 1:1 with my manager about our product hitting ZBB, I have to verify Sean's eligibility for ABA therapy, attend a meeting for all FTEs working on Win7, check with my PM as to how he wants the MSI packages designed, see why Sean's OT isn't working on potty training, get ready for his next IEP (fortunately, his TVI seems to be on the ball)then, when I get home, I need to RAS in and fix some bugs I've found in the XML I feed to WiX to create the MSI and MSM files we're using across WETR for testing. Oy, the life of an SDET with a SpEd kid. I suppose it could be worse-an autism diagnosis is easier to deal with than PDDNOS).
That comment probably needed a glossary.

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kibbles February 23 2008, 22:46:38 UTC
Maybe that's why I'm going into nursing. I probably know more of the vocab going into it than my classmates. :P

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curtis February 24 2008, 23:01:09 UTC
I actually understood 2/3 of that (of course, I program for fun, my father's an OT, and I'm borderline-Asperger's)...

Yeah, it could use a glossary.

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seularen February 23 2008, 23:04:01 UTC
Your kid has autism? My sister has down syndrome! (Also my aunt has schizophrenia, my cousin and I have depression, and my mom is an early special ed teacher.) Let's bond!

All the kids I babysit have some sort of special need. I knew a kid who was diagnosed with autism but while I knew them was re-diagnosed with something else. It really sucked for the parents. He was a real sweetheart; it was his sisters that gave me the trouble.

My sister goes to public school. It really sucks. She's two years away from graduating, and we have no idea what's going to happen with the rest of her life. She's really independent, but obviously not that independent. I'm in university, so I'm away from all of it. I'm thankful for it, but I feel guilty.

I'd kind of love to see the military try to deal with an autistic kid. I think their heads would explode slightly.

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phinnia February 23 2008, 23:18:12 UTC
*grin* There'd be a whole new version of Skippy's List.

Yep! Child is autistic, nonverbal and totally blind. Also has something akin to auditory processing disorder, so communication is ... entertaining. :-P

*nodnodnod* Yeah, I get what you mean about the thankful/guilty feelings, so much.

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seularen February 23 2008, 23:42:42 UTC
Holy crap. That's a lot of stuff to work with. I've worked with autistic kids who were completely nonverbal but never blind. Does he know sign language? (Depends on how old he is, I guess).

I'm really close with a little boy who has down syndrome and can speak very, very little (and even then we have no idea what he's saying) but he doesn't exactly get into trouble that often. He likes to run away and get his way but other than that he's the sweetest kid.

I have so many fun special needs stories. How can you not when they do ten outrageous things a day?

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phinnia February 24 2008, 02:57:50 UTC
We're working on teaching him tactile sign (insert grumble on how the bedamned school does not appear to see this as a vital fucking priority here). :P
Seaners is ... odd. <3 But fun, especially when it's a normal week that hasn't had me sick for half of it and isn't coming on the heels of a hospital trip for drug interactions that they thought might be a stroke (our adventures! let us show you them.) I hate school breaks. He gets very, very restless, to say the least.

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miintikwa February 23 2008, 23:27:07 UTC
I hope you can get some respite. :D

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