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This so rarely happens to me nowadays, but it really messes with me every time. I got breakfast this morning at Dunkin Donuts in Montpelier. I was dressed to travel in pretty comfy clothes, but my presentation was no worse than it is on many days when I'm out running errands ( Read more... )

Okay. I lost this one once, and rewriting things is like… my very least favorite thing. If I try to recapture things the way that I said them the first time, it is always worse and seems stilted. If I try to write things in a manner that is fresh, I wind up heading in a completely different direction, and become convinced that my initial direction ( Read more... )

I've tiptoed around this one for a while. It's a tough one because a lot of the shame issues wrapped up in this issue are exactly my issues. It's a bit self-absorbed, but my feeling is that if I am personally hesitant to engage an issue in a public forum, it's a really important one to force, because it is my tendency to put myself out there to a ( Read more... )

*I don't make citations of any sort in my narrative posts. It is my hope that the majority of what I say here will be very reliably backed up in a follow-up post with a more fact-based tone ( Read more... )

After my last post, I figured I'd best clarify a few things. I believe in public shaming. I do. I've done it. If you're a serious asshole who has been given a chance or three to know better, you deserve to be hung out to dry. I think that the public shaming of bullies and thugs is both called for and effective ( Read more... )

Hi, y'all ( Read more... )

So... there's news, but nothing earth-shattering. Day-to-day, I'm doing okay. I have 1-3 bad POTSy days every week, but the compression stuff seems to help and we're dialing meds in toward improvement slowly but surely ( Read more... )

It's well past time for an update, though I have little to update. Medically, I have two diagnoses - both are very much in the grey, in that neither has been DEFINITIVELY declared for me. POTS seems to be the most decisive of my diagnoses. The tilt table test really dialed that one in and I definitely fit the bill for POTS. The anomoly here is that ( Read more... )

I was scheduled today for an EMG (Electromyography) and a tilt table test.As always, these tests were schedules many, many weeks ago but it takes time to actually get in to have them done. I'd read up on both tests extensively and was prepared for the worst possible variations of each (every site or practitioner has slightly different protocols ( Read more... )