[cancer] Talking about dying and death

Dec 17, 2013 07:43

Yesterday, Lisa Costello, Dad and I met with my palliative care doctor. There was some discussion of my sleep issues, now essentially gone because I am off the Regorafenib. We also told them about our efforts at clinical trials. They were less interested in the medical details than in how I was experiencing the process. They talked about people who ( Read more... )

radiantlisa, health, death, cancer, child, personal, family

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Comments 5

martianmooncrab December 17 2013, 19:13:44 UTC
every two or three months.

tell them you will hold them to those appointments..

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a_cubed December 18 2013, 00:30:39 UTC
The discussion of which hospices are "in-network" for your personal health care funding body (ugly descriptive phrase but the usual shorthands in use in the US are utterly misleading) rather reminds me of a "death panel". Just saying.

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jaylake December 18 2013, 00:52:59 UTC
Clearly you are a Kenyan Muslim socialist who does not understand the superior American market-driven way of dying.

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a_cubed December 18 2013, 01:51:12 UTC
Indeed, apart from being Kenyan, Muslim or actually socialist(*), that describes me very well.

(*) In British terms, I'm not a socialist. In US terms, well the word is juts a meaningless slur in the US for anyone not 100% in favour of the plotucracy AFAICT.

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wild_irises December 18 2013, 06:40:37 UTC
That "unpredictable catastrophic event" part helps me understand what happened with my brother. Which is useful, so thank you.

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