Travel yesterday was irksome but not dire. Both flights were delayed for a combination of weird, trivial and unannounced reasons. Because travel ( Read more... )

Dad, Lisa Costello and I are leaving this morning for 12/30 and 12/31 medical consultations at NIH. We are flying so early so as to avoid being trapped by possible weather delays over the weekend, and thus missing the appointments ( Read more... )

I had a major emotional wipeout the past few days. Which, frankly, is not over, though I've come far enough through it to keep moving ( Read more... )

Yesterday, ( Read more... )

Getting the brain MRI this past Wednesday was a pretty tedious process.

First of all, in the continuing tradition of a daily crisis in my life, just as I was sitting down to dinner with Lisa Costello, Jersey Girl in Portland and C-, the hospital called to tell me that their MRI machine was down and my appointment that evening was cancelled ( Read more... )

Yes, I am fine. (People always ask when I don't blog.) Up hours after my bedtime with the late evening brain MRI, and thus slept late this morning.

Also, I have to pop out shortly to a funeral home meeting about my cremation and memorial contract.

Regular blogging service will resume later today, crises du jour permitting.

Yesterday was very much the far side of nuts ( Read more... )

Here’s the radiologist’s summary:
Interval enlargement of nearly all of the pulmonary and hepaJc metastases.

That’s doctor speak for “some of these tumors have almost doubled in size in the last six weeks, and a few of them have grown so much they’re fusing together.”

Nothing whatsoever surprising about this, but it is discouraging as hell.

Yesterday, Lisa Costello, Dad and I met with my palliative care doctor. There was some discussion of my sleep issues, now essentially gone because I am off the Regorafenib. We also told them about our efforts at clinical trials. They were less interested in the medical details than in how I was experiencing the process. They talked about people who ( Read more... )

This week includes an appointment with my palliative care doctor, my usual weekly therapy appointment, an appointment at the funeral home to negotiate the contract for my final arrangements, two medical appointments for a family member which I shall be attending, another string of phone calls regarding our efforts to engage a clinical trial at NIH ( Read more... )