Comments | gently_falling: just a question?

gently_falling

just a question?

May 02, 2013 15:48

when someone reacts to you mentioning that they may or may not have an illness, is it wrong for them to automatically say "oh thats bad"? was i over reating when i snapped at the two of them? i may have been but fuck isn't there a better way that they could say it? that is if they were meaning to be supportive?

Comments 3

wood76 May 5 2013, 15:15:31 UTC

It's hard to really comment on this b/c of how things kind of get lost in translation on the internet... as in, I don't know "how" they said that comment - was it sarcastically, rudely, just made as a regular comment, etc. But, I'll just assume that they said "oh that's bad" as a regular statement when you told them you might have an illness. I can relate to getting tired of how people react when I tell them about certain medical conditions - I definitely heard a lot of weird comments after the stroke, considering I'm in my 30's and that's just not a problem my friends/family have dealt with yet. But even though some of the comments I got were weird, they were all meant in a supportive way ( ... )

wood76 May 5 2013, 15:16:41 UTC

As I posted this I realized that my comment is like 10 times longer than your journal entry LOL! Sorry about the novel I just wrote you ;)

i hope i am making some sense i am running on no sleep gently_falling May 6 2013, 20:14:15 UTC

they are looking to see if I lupus or another auto immune disease. Right now my skin I don't know if they call it marbled but and I have rashes and my hands and feet turn colors but the biggest issue is the pain in all the joints etc. so I don't know meeting with the rheumatologist tomorrow to find out the results of the blood tests I had done. as far as how it was said I started off saying that I possibly have lupus and then the two of them (one) "that's bad" and the other said "yes that's really bad". I think it bothered me because one they solidified my fears I forgot to mention also that they told me how people die from this. these are all things I know already and when I mentioned this in group I guess I was hoping for something different something like "I'm sorry to hear that you are going through this, or if they knew someone, positive things that would have been helpful. I just didn't feel supportive just more scared than I was when I walked through the door. I don't know if this makes sense. I just needed support, I know the ( ... )