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Nov 17, 2013 08:57

This is Me )

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bas_math_girl November 16 2013, 22:46:38 UTC
This must be absolutely horrendous for you!!! *hugs* I really hope they sort this out for you soon.

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fansquee November 16 2013, 23:00:21 UTC
I can't even look down and feed myself, so am currently living off cups of tea and so forth.

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rightxhere November 17 2013, 08:18:16 UTC
I've just been catching up on your LJ.... I'm so sorry for all this new health crap you've got going on, you so don't deserve any of it ( ... )

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fansquee November 17 2013, 10:17:39 UTC
All doctors are know-it-alls. It's just how it is.

Yeah, we've tried with different foods and such, haven't had any change that we've noticed. Most of my leavens have become normal now, it's mosly just this stupid puffiness that is driving me nuts.

Feel more than welcome to come and kick butt, or find a billionaire and make them invest in organ regeneration.

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danlef November 18 2013, 09:55:27 UTC
Oh my, I feel for you. This feeling like your body is betraying you, it's fucked up because it makes you angry and you're feeling like there is nobody to be angry at. I hope you get better soon ( ... )

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fansquee November 18 2013, 13:26:05 UTC
I hate my doctors so much now I record my appointments on my phone. It's not so I can use it against them, but so that if they can't remember what they've ordered for my treatment/care I only have to play it back.

I love how they are all know it alls but shut their mouths quickly when I tell them they keep fucking up and I will sue for medical negligence.

I'm not brave, I just don't want to die a bloated whale. Honestly I'm scarred fucking shitless because all the people I've seen who've had kidneys and died (usually its other complications) have looked like me, and it just sends shudders down my back.

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danlef November 18 2013, 13:47:03 UTC
Well, my uncle had a bone marrow transplant (leukemia) and at one point, he looked very much like you. Only he was sixty at the time and already bald, so it looked kinda worse. I'm just not sure I should mention that he deflated eventually back to his old shape and lived some more years to quite stupidly die of pneumonia because he couldn't be fucking made see the reason of not cleaning the attic in winter but that's another story.

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fansquee November 18 2013, 14:13:39 UTC
Yeah, it's not really the organs that kill us, it's the medications and sometimes shit that we do that is stupid.

Problem is I've always been big in terms of weight, but before this transplant I was 54kgs then they miscalculated my weight during transplant and I shot up to 65kg in 7hrs. And no matter the friggen exercise, what I do and don't eat, I can't bloody lose it.

Problem is, because I try and eat healthy too, my levels go wacko. My salt, potassium and other levels dropped a few months ago because I gave coke up. My doctor literally walked in with a bag of chips and a can of coke and said "Look, fuck losing weight ATM (I was 58kg at the time) enjoy being able to eat stuff that dialysis patients can't, because obviously supplements aren't working and you're malnourished."

Yeah, you had to be there. I literally had stopped eating all the junk food and was eating as healthy as I could and I ended up in hospital because I was fucking malnourished.

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