Oh my, I feel for you. This feeling like your body is betraying you, it's fucked up because it makes you angry and you're feeling like there is nobody to be angry at. I hope you get better soon.
Doctors being know-it-all's, oh God, I've been there too. Seven years ago, after my wedding, we tried to have a family, I couldn't get pregnant (I had an ovary cyst). My gynecologist prescribed me some medication I don't remember the name of any more (it should boost the ovaries into producing eggs), but what I remember is that it made me lose twenty pounds in three weeks (I looked like a prisoner in a Nazi concentration camp) and get awful red spots all over my neck, chest and arms, along with a truly horrendous moodiness (hormones do that). And to top that, on the next scan it showed that I no more had one cyst - now I had twenty of them. I pointed out to the doctor that I think I should try another kind of treatment and she said to me in exactly these words: "I'm the doctor here."
So, I switched doctors. My new gynecologists abandoned that course of treatment, tried something kinder, even when it took more time, and after two years I got pregnant - and I have now three kids. I'm sure that with my old doctor, I wouldn't have a single one.
So I hope everything will be all right in the end for you too. You're already brave, I wish you luck.
I hate my doctors so much now I record my appointments on my phone. It's not so I can use it against them, but so that if they can't remember what they've ordered for my treatment/care I only have to play it back.
I love how they are all know it alls but shut their mouths quickly when I tell them they keep fucking up and I will sue for medical negligence.
I'm not brave, I just don't want to die a bloated whale. Honestly I'm scarred fucking shitless because all the people I've seen who've had kidneys and died (usually its other complications) have looked like me, and it just sends shudders down my back.
Well, my uncle had a bone marrow transplant (leukemia) and at one point, he looked very much like you. Only he was sixty at the time and already bald, so it looked kinda worse. I'm just not sure I should mention that he deflated eventually back to his old shape and lived some more years to quite stupidly die of pneumonia because he couldn't be fucking made see the reason of not cleaning the attic in winter but that's another story.
Yeah, it's not really the organs that kill us, it's the medications and sometimes shit that we do that is stupid.
Problem is I've always been big in terms of weight, but before this transplant I was 54kgs then they miscalculated my weight during transplant and I shot up to 65kg in 7hrs. And no matter the friggen exercise, what I do and don't eat, I can't bloody lose it.
Problem is, because I try and eat healthy too, my levels go wacko. My salt, potassium and other levels dropped a few months ago because I gave coke up. My doctor literally walked in with a bag of chips and a can of coke and said "Look, fuck losing weight ATM (I was 58kg at the time) enjoy being able to eat stuff that dialysis patients can't, because obviously supplements aren't working and you're malnourished."
Yeah, you had to be there. I literally had stopped eating all the junk food and was eating as healthy as I could and I ended up in hospital because I was fucking malnourished.
huh, first, 54 kgs is not big in terms of weight to me, unless you're an adorable hobbit. I am 167cm and 62 kg right now, and when I was 54, it was at the memorable ovary medication fiasco and I was skin and bone then. It took my two years of feeding up the get back to 60 kg, I couldn't put on any weight, my hormone levels were completely screwed up. Well, then pregnancy happened and I was 75 pretty quickly:)
Your coke 'diet' reminds me of my friend whose 18-old child went through bad case of some childhood malady and when she recovered she was so thin that the doctor said "Feed her pizza and chips, anything she likes as long as she eats, because she's malnourished and she needs fat and sugar before any vitamins."
Actually.... I am more or less a hobbit. 140cm tall or 4'7"? I'm 5cm taller than Peter Dinklage (dude who's in Game of Thrones). So... I'm listed as 'obese' for my height and I bloody feel it too. And the worst thing is at the moment my boobs are 14E and growing. My back is aching so bloody much.
Yeah, goes to show that as long as you eat in moderation you're more or less allowed to eat what the hell you want. But I still cannot drink a full can of coke, nor can I bring myself to eat a full pack of chips. Its just not in me.
Wow, you're the first person I know whom I would be looking down in the eyes! Usually I have to tip my own head back. I don't know why but being 167 is very much under the norm where I live. (It's funny in our choir where I have to stand in the front row otherwise I wouldn't be seen at all and heard only very poorly:))
Not to mention that I wore my niece's shoes when she grew out of them.
Yeah, I prefer sitting when talking to people because it gives me a crick in the neck. Good thing is I'm in proportion with my limbs, so that's a good thing.
I'm lucky that I've still got the joggers from highschool... That was 7 years ago. :-)
Doctors being know-it-all's, oh God, I've been there too. Seven years ago, after my wedding, we tried to have a family, I couldn't get pregnant (I had an ovary cyst). My gynecologist prescribed me some medication I don't remember the name of any more (it should boost the ovaries into producing eggs), but what I remember is that it made me lose twenty pounds in three weeks (I looked like a prisoner in a Nazi concentration camp) and get awful red spots all over my neck, chest and arms, along with a truly horrendous moodiness (hormones do that). And to top that, on the next scan it showed that I no more had one cyst - now I had twenty of them. I pointed out to the doctor that I think I should try another kind of treatment and she said to me in exactly these words: "I'm the doctor here."
So, I switched doctors. My new gynecologists abandoned that course of treatment, tried something kinder, even when it took more time, and after two years I got pregnant - and I have now three kids. I'm sure that with my old doctor, I wouldn't have a single one.
So I hope everything will be all right in the end for you too. You're already brave, I wish you luck.
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I love how they are all know it alls but shut their mouths quickly when I tell them they keep fucking up and I will sue for medical negligence.
I'm not brave, I just don't want to die a bloated whale. Honestly I'm scarred fucking shitless because all the people I've seen who've had kidneys and died (usually its other complications) have looked like me, and it just sends shudders down my back.
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Problem is I've always been big in terms of weight, but before this transplant I was 54kgs then they miscalculated my weight during transplant and I shot up to 65kg in 7hrs. And no matter the friggen exercise, what I do and don't eat, I can't bloody lose it.
Problem is, because I try and eat healthy too, my levels go wacko. My salt, potassium and other levels dropped a few months ago because I gave coke up. My doctor literally walked in with a bag of chips and a can of coke and said "Look, fuck losing weight ATM (I was 58kg at the time) enjoy being able to eat stuff that dialysis patients can't, because obviously supplements aren't working and you're malnourished."
Yeah, you had to be there. I literally had stopped eating all the junk food and was eating as healthy as I could and I ended up in hospital because I was fucking malnourished.
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Your coke 'diet' reminds me of my friend whose 18-old child went through bad case of some childhood malady and when she recovered she was so thin that the doctor said "Feed her pizza and chips, anything she likes as long as she eats, because she's malnourished and she needs fat and sugar before any vitamins."
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Yeah, goes to show that as long as you eat in moderation you're more or less allowed to eat what the hell you want. But I still cannot drink a full can of coke, nor can I bring myself to eat a full pack of chips. Its just not in me.
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Not to mention that I wore my niece's shoes when she grew out of them.
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I'm lucky that I've still got the joggers from highschool... That was 7 years ago. :-)
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