You absolutely have EDS3, no doubt. You have far worse symptoms than me and I've got a diagnosis. It's hilarious that your doc ignored sooo many positive signs but didn't diagnose because you're missing one of the possible symptoms - unbelievable. How utterly stupid. I also don't think a geneticist is the answer as many people test negative on the test even though they have a diagnosis; here in the UK a rheumatologist would diagnose you based on having say 70% of the symptoms, which you absolutely do
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Well I went to my GP and I got treated like crap. The joint pain is so bad. Motrin isn't helping at all and I showed him that I am hypermobile by putting my thumb to my forearm. He just said: "don't do that
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OK I looked it up and Motrin is ibuprofen. It only started to work for me when I was on the Ami. Could you get a new GP or transfer to another one in the same practice? Because not only is he incompetent but the statement "you shouldn't be on any controlled substances. I don't want you taking medication" is like bwuh? Did you ask him why?
I don't know what urgent care is, but if it's the same as A&E here they won't help you. Although I think A&E is called ER there so maybe you have another midway service we don't. What type of pain is it? Do you think your joints are subluxing/dislocating, or is it a throbbing pain? If it's throbbing you could also have osteoarthritis or fibromyalgia. You definitely need to go on something like Amitriptyline ASAP; I don't see what your GP's issue is with that as it's such a low dose that's required and it's very regularly diagnosed for a variety of issues http://en.wikipedia.org/wiki/Amitriptyline
Urgent Care is like the ER but a step down from that. They have diagnostic services and can treat almost anything the ER can. It's used for times when you need to see a doctor right away but you don't need emergency services. An example would be someone who has a broken bone and needs an x-ray and a cast. The ER could do that, but so can an Urgent Care center. If someone is having a heart attack, they'd go to the ER because they need care ASAP.
It's very hard for me to describe the pain, but I will try the best I can to express it. It is like a deep, horrible ache. Kind of like growing pains but multiplied by a hundred.
It could be subluxation. Maybe that's what all the popping is about. Like when I move the same joint more than once, it'll pop a few times.
I was thinking I would get something geared toward joint pain. I didnt expect hardcore drugs but it feels like someone is tearing open my knee caps. I tried Motrin before going to the dr the first time around. If that had worked I wouldnt have gone again, but the pain is excrutiating. Ive never asked for painkillers from any doctor before and I prefer not to take them but the pain is 10 out of 10 otherwise.
I have a rheumy appt tomorrow morning and I am waiting for the referral for the geneticist ti go through. I have had echos, I have MVP and tricuspid regurgitation. I get one every year.
Except my doc doesnt even want to give me antibiotics when I have strep and thinks my interstitial cystitis is from stress when it isnt. My sis and dad have the same issues with him. I didnt ask him for anything specific but there are drugs that arent hardcore for joint pain like Indocin. Though I think its not manufactured anymore.
Im not saying I want hardcore pills forever, I wanted something that would help just until my appt tomorrow. I dont see how its wrong. I didnt waltz in and ask for vicodin. I asked him for simething other than motrin and tried to show him my hypermobility but he didnt want to even see that. The problem isnt me and I am going to find a new GP.
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I don't know what urgent care is, but if it's the same as A&E here they won't help you. Although I think A&E is called ER there so maybe you have another midway service we don't. What type of pain is it? Do you think your joints are subluxing/dislocating, or is it a throbbing pain? If it's throbbing you could also have osteoarthritis or fibromyalgia. You definitely need to go on something like Amitriptyline ASAP; I don't see what your GP's issue is with that as it's such a low dose that's required and it's very regularly diagnosed for a variety of issues http://en.wikipedia.org/wiki/Amitriptyline
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It's very hard for me to describe the pain, but I will try the best I can to express it. It is like a deep, horrible ache. Kind of like growing pains but multiplied by a hundred.
It could be subluxation. Maybe that's what all the popping is about. Like when I move the same joint more than once, it'll pop a few times.
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(The comment has been removed)
I have a rheumy appt tomorrow morning and I am waiting for the referral for the geneticist ti go through. I have had echos, I have MVP and tricuspid regurgitation. I get one every year.
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(The comment has been removed)
Im not saying I want hardcore pills forever, I wanted something that would help just until my appt tomorrow. I dont see how its wrong. I didnt waltz in and ask for vicodin. I asked him for simething other than motrin and tried to show him my hypermobility but he didnt want to even see that. The problem isnt me and I am going to find a new GP.
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(The comment has been removed)
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