poor baby :( i have no words for what you are going through right now. my heart goes out to you. will keep you, your family and baby Hayes in my prayers. if it is any consolation, babies don't feel pain at the same level as we do because their pain sensors are not as developed. i hope he is not suffering too much. you get some rest too.
do you need resources here locally? my friend pia runs a foundation to support families with babies born with trisomy 18. her youngest child gabriel had this.
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i'll pray for baby hayes i promise.
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let me know if you want to be in touch with them.
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thanks!
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