Baby Artur Hayes Update
This has got to be one of the toughest updates I'll write up. No matter how I've primed my self, I still break down in tears.
I got in Tuesday night around 10PM, rode in a car for about 2 hours and went straight to the hospital. I stopped by the Nursery to take a look at Hayes. It happened that his upper left lung collapsed again and they had to put a tube back in to help him breathe again. That was absolutely surreal. He hasn't even met me yet, and here I am watching helplessly as they try and help him out.
After about 10 minutes I could see some smiles from the doctors and nurses, so I felt a little relieved. The resident doctor came out to talk to me. She gave me a list of all of Hayes' problems. I still haven't had the chance to get close to him and look at him so I was just in a state of daze with everything the doctor told me. They think he has a syndrome based on some of his physical characteristics. They think he has Trisomy 18 and have urged me to get a chromosome test, which I agreed to. It takes 4 weeks to confirm whether he has Trisomy 18 or Edwards Syndrome.
The next day the pediatrician met with us and gave us a 10,000 feet overview of everything that's been going on. I had a bad feeling with the way he was reluctant to give us more detailed information. I just played along just so I wasn't rocking the boat. My aunte, who was an ob-gyn, came by and gave us more detailed information on Edwards Syndrome. It's quite scary when you're told that less than 10% of babies get to live past 1 year.
I haven't told my family yet. I tried telling my brother my brother today and I broke down. Trying to tell him that it wasn't good for Hayes was tough. I had to hang up, it was one of the toughest things to say. One of the toughest things to admit. Ivy and I are basically allowing Hayes to decide his fate. If he decides to fight and move forward, we'll be there for him. But if he feels that it's better for him to not subject himself to a difficult life, then he'll always be in our hearts and minds. We just pray that God will do what's best for Hayes. If he decides that it's not for him or us, that he doesn't suffer too much.
But everytime I go to the NCU, and look at him. I feel like breaking down, I always tell him that I love him and that I know he's a fighter. That we're there for him through the struggle if he chooses to do so. Thank you for everyone's well wishes from my previous post. It's a different feeling to be a dad, how you'd want to give up everything to make his life better. I'm babbling again. I haven't slept too much in 4 days.
I got in Tuesday night around 10PM, rode in a car for about 2 hours and went straight to the hospital. I stopped by the Nursery to take a look at Hayes. It happened that his upper left lung collapsed again and they had to put a tube back in to help him breathe again. That was absolutely surreal. He hasn't even met me yet, and here I am watching helplessly as they try and help him out.
After about 10 minutes I could see some smiles from the doctors and nurses, so I felt a little relieved. The resident doctor came out to talk to me. She gave me a list of all of Hayes' problems. I still haven't had the chance to get close to him and look at him so I was just in a state of daze with everything the doctor told me. They think he has a syndrome based on some of his physical characteristics. They think he has Trisomy 18 and have urged me to get a chromosome test, which I agreed to. It takes 4 weeks to confirm whether he has Trisomy 18 or Edwards Syndrome.
The next day the pediatrician met with us and gave us a 10,000 feet overview of everything that's been going on. I had a bad feeling with the way he was reluctant to give us more detailed information. I just played along just so I wasn't rocking the boat. My aunte, who was an ob-gyn, came by and gave us more detailed information on Edwards Syndrome. It's quite scary when you're told that less than 10% of babies get to live past 1 year.
I haven't told my family yet. I tried telling my brother my brother today and I broke down. Trying to tell him that it wasn't good for Hayes was tough. I had to hang up, it was one of the toughest things to say. One of the toughest things to admit. Ivy and I are basically allowing Hayes to decide his fate. If he decides to fight and move forward, we'll be there for him. But if he feels that it's better for him to not subject himself to a difficult life, then he'll always be in our hearts and minds. We just pray that God will do what's best for Hayes. If he decides that it's not for him or us, that he doesn't suffer too much.
But everytime I go to the NCU, and look at him. I feel like breaking down, I always tell him that I love him and that I know he's a fighter. That we're there for him through the struggle if he chooses to do so. Thank you for everyone's well wishes from my previous post. It's a different feeling to be a dad, how you'd want to give up everything to make his life better. I'm babbling again. I haven't slept too much in 4 days.