Comments | chaoticidealism: Support is Important

chaoticidealism

Support is Important

Aug 20, 2010 12:26

Parents of autistics, and families who are caretakers for disabled people in general, aren't supported nearly enough. They often have to advocate pretty hard to get the assistance they need; and in some cases they may never be able to get it.
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services, autism spectrum, family

Comments 5

Agree! ext_242489 August 23 2010, 21:41:58 UTC

I totally agree with the need for supporting not only autistic kids, but their families as well. I also think that there are a large number of 'undiagnosed' people out there who could benefit from the same services. I wish society placed more value on providing these services than they do. Keep blogging!

You go girl! anonymous August 24 2010, 01:08:08 UTC

Lisa I am very encouraged to read your blog. My daughter has PDD and she has done very well she is 19 and just graduated from HS. I have given her the truth about her weakness but I have also encouraged her strengths and she is able to be honest about what her struggles are and she Knows how to work around obstacles in her life like anyone else. Everyone has strengths and weaknesses no one is perfect and everyone has to overcome those obstacles in life. I am very happy to see you speak out and share. My prayers are with you...

anonymous August 24 2010, 02:11:56 UTC

Our grandson is Autistic . . . when he was very young I know he was linking into my thoughts . . . weird I know, but I was in the movies with him and SO thirsty, but hadn't bought anything to drink . . . I couldn't stop thinking about how thirsty I was and finally he sighed, nudged me and handed me his Root Beer. There were many, many incidents like this. So, after a while I worried that he'd know how much I worried about him and this would upset him, so I sort of shut down around HIM. Sad, I know.

Now he's 18 and going through a rough time . . . not able to concentrate in school, getting upset and he's lost interest in things he used to love, like playing Rock Band with his siblings or playing computer games. He live 1000 miles away and I only see him a few times a year. So, after reading your posts, I'm wondering if you have any suggestions about how I might be able to help him? He's very high functioning and is said to have "Aspergers's" syndrome and I know he's smart, but don't know how to connect.

anonymous August 24 2010, 15:12:24 UTC

I am so pleased to be reading your blog, you are educating me more than any "expert" ever has, thank you so much.

A Mum :)

your book ? anonymous August 25 2010, 15:23:24 UTC

Hi, again, Lisa.
I am going to assume that many others have also told you this. After hearing you, and reading two lengthy and very cogent posts, I must tell you that you are a very gifted writer, as well as a poet.
Do consider writing a book, Lisa. The world really does need to hear your words.
I have a friend on FB that is at her wits end, having bought into all the myths you have dispelled about Autism and Aspergers.
In addition, so many other "neuro-not-quite-so-typicals" need to know how very little they know or understand about those we classify as autistic.
As a totally different topic, what do you think about the last chapters of Job ? I find God's reply to him especially moving to those of us who do appreciate "patterns".
"Who is this who asks questions without knowledge ? Where were you when I made the earth...."....
just a random thought...
best of everything to you, Lisa.
larry