Many of my friends might not realize that I have my space, face book and live Journal. I'm the first to admit that my updating of these is on and off but I like to think that some of my posts may be thought-provoking conversation starters, I write about things that happened to me thoughts I have and just general topics that interest me. I've said ( Read more... )

I just returned Saturday afternoon from one of the happiest weeks of my life, my second summer while second week that it is at Indian Trails Camp. I attended for the first time last summer and discovered that I had been a moron for 21 years because this opportunity had came along several times before but I always said camp wasn't for me boy was I ( Read more... )

Hello to all my live Journal readers, I know I haven't been posting much but what can I say I have been busy since my last post I have spoke to 200 firefighters at a muscular dystrophy fund-raising kickoff I was uncertain of how well my speech was received until I concluded and was overwhelmed with a standing ovation &many watery eyes in the crowd ( Read more... )

I am very exciting and frustrating all at the same time, I just got done installing Dragon NaturallySpeaking 9 this is the second time I've played around with this program the idea of having a program that would correctly convert my speech to text is very exciting! Unfortunately my experiences have been very unsuccessful but maybe this time it ( Read more... )

Have a disability makes life tough, having an undiagnosed disability is even tougher. I have been diagnosed with CMT (MD), but the other forms of MD which I have are undiagnosable at this point. I try not to dwell on my physical problems but the past couple of months my physical condition has been leaving me tired, sore and just feeling off. ( Read more... )

I haven't updated in awhile I know. My life has been going along, as of late it has been super crazy: My Aunt Died, My Grandma has breast cancer and one of my teammates Died. What a couple of weeks and to add to it all I've been feeling crappy for weeks. But i am still above the dirt, so complaing seems kind of petty.

Thank you for the comments on my last post, comments make updating more fulfilling. I am supposed to meet up with Carolyn this weekend but I don’t if it’s going to work, which won’t be good but time will tell. I have sports practice tonight and Dad and I are going out to dinner.

I haven’t updated in forever I know. Let me see: my x-mas was good, I am ready for summer breeze’s instead of winter storms, I’ve been “healthy” meaning no er visits, I am just going day by day. In the near future no BIG plans.

As society has evolved so has Medicine, this is easily visible for example for hundreds of years diseases such as Polio, Chicken Pox, & Pneumonia would almost always be fatal. Today Polio is all but gone, Chicken Pox has a vaccine and Pneumonia is usually treated outpatient with antibiotics. However many medical treatments didn’t pan out i.e. ( Read more... )

Being disabled medical advancements are very exciting to me, not only those that deal with MD but medical advancements in general. So when Stem Cell Research first came into play the excepted benefits were very interesting to me, but then the words “embryonic stem cells” were uttered Pro-Life Advocates protested this and said that embryonic stem ( Read more... )