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ever_smaller May 28 2007, 08:27:22 UTC
I think the term "CFS" covers a range of illness as well. Latest research points to that too. I do think that M.E is one of those illnesses, and I think adrenal fatigue can be another one which has been missed. Nutritional deficiency can often be put in there too, as several of them can cause chronic fatigue and a lot of the other symptoms. I think it's down to each person to try and figure out what is wrong with them as best they can. Of course, for a lot of us, that's not possible, and there's hardly any interested doctors. *sigh* For me though, I knew the problem was with my limbic system/hypothalamus before I even got a diagnosis. I've been sick since I was a child, and after a very nasty virus when I was 10 I developed M.E symptoms, but didnt know that of course...for years I've been saying something is wrong with my hypothalamus, and finally a doctor has confirmed it, said I have "the original M.E" and is referring me to a speciailist. It only took 18 years... hey, I'm lucky!

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obscenely May 28 2007, 12:03:30 UTC
hypothalamus is a gland in the brain.. am I wrong? am I thinking of something completely different? So.. does this lead to a treatment program or? I'm lucky .. it only took me about, 3 months to have a dr. look at me, show me test results (for various symptoms he was testing) and go 'you have cfs'.

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ever_smaller May 28 2007, 20:18:59 UTC
Not really a gland, a collection of nervous tissue, so unfortunatly, no treatment. But it controls the entire endocrine system, temperature, blood pressure, etc etc... pretty much everything in some way or another, along with other parts of the limbic system (thalamus etc) ... I'm thinking, the reason peoples symptoms vary when they have the same illness, is because maybe there's an autoimmune componant to it, and it's attacking slightly different areas of the limbic system, which would also explain why the symptoms can vary so much day to day, week to week even in the same person. Of course, it might not be autoimmune all the time, it could be a response to remnants of the original viral attack within the nerves of said areas when there was a viral onset. Maybe for those whos onset was gradual, it is autoimmune (or something else?) and for those who had a virus, it's a response to that causing the immune system to attack it's own tissues (so, autoimmune but for a specific reason? I dont know, do I make sense?!) or maybe I'm totally ( ... )

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luighseach May 28 2007, 08:44:31 UTC
It does make sense that it will help.

I was in Göteborg where they took blood tests and stuff, and said that many CFS sufferers had blood cells that kind of stuck together so they could get the oxygen (and other things) around the body as quickly as most other people.

So they gave me some pills (papaya root), and it did make me better. Not well, but better!

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luighseach May 28 2007, 08:46:36 UTC
(together with drinking a lot of water. Drinking a lot of water still makes an enormous difference for me!)

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obscenely May 28 2007, 12:06:34 UTC
I drink about 30 glasses of water a day.. I've always been a big water drinker though. I wonder if I'd feel worse if I drank alot less?

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luighseach May 28 2007, 13:25:34 UTC
I don't know about you, but I certainly do. It took me close to a year to really form a habit out of drinking enough water, but it is the best thing I ever did for my health!

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emmalificent May 28 2007, 15:20:26 UTC
I also think that CFS is more an 'umbrella term' than one specific illness. Maybe it's a number of different similar illnesses, or maybe it's some 'dysfunction' (for lack of a better term) that causes different symptoms for different people? I dunno.

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