Wow. Wowowowowowowow.

[amamama]

I've been to a Doppler scan.  It took a long time, the good endocrinologist (who has to be the brother or other relative of my former doc, because I finally remembered his first name - and they're not the same) went back and forth, and I was lying there on the bench wondering what that deep furrow between his eyebrows meant.  Didn't he see anything

Comments

[sabethea]

Oh. I understand SO MUCH the joy of finding a 'why', even if objectively it's not a good why. Here's hoping that something pleasing in the way of Things To Help can be found.

[amamama]

I guess you'd understand that, yes. The anticipation has been hard to handle, but now I'm floating. Totally unable to grasp what it might mean in the long run, right now I'll just be deliriously happy when I can get back to exercising. When Things To Help are found and done.

[todayiamadaisy]

Sometimes any news is good news, even it's bad. Fingers crossed they can do something with the news!

[amamama]

Oh, I think they can. They regularly treat worse conditions. The main thing is noone have thought about looking before.

[coquillagement]

Wow! Naturally I started looking up info in CCSVI and read Zamboni's research - really interesting about his emphasis on posture! Found another guy who talks about a corrective procedure but with a study too small to make me comfortable.

It's great to have something to go on, and I am glad you got the Doppler.

[coquillagement]

My mistake, the second article is by Zamboni also, it's just on another guy's website and the tenor of that made me leary.

[amamama]

You know, Zamboni himself says his study is too small, he just grabbed the few MS patients he could find. The problem is that many neurologists just dismiss it out of hand. "Not big enough. Worthless." Instead of doing what I think they should, which is "Wow, this is interesting. What if this could be the solution for at least some of our MS patients? Let's do a larget study on this." Because even though the study is fairly small, it is statistically significant - and it has more participants than some studies on new drugs.

[coquillagement]

Absolutely, they should. If something as (relatively) simple as an angioplasty can provide such needed relief? It should be promoted all over!

[anyaxstrindberg]

Wow! I've never heard anyone who can "feel" their brain! (but I think I know what you mean, going under water helps sinus headaches for me and that's pressure as well albeit in different areas)

If there's a wee abnormality yet undiscovered (the size of the flap, not its effects) that sounds so much better than "Well we have no clue!" (as in my sisters chronic migraines which she can't afford care for outside of excellent hydration) I'm glad someones finally spotted it and is giving you that string!

[amamama]

I've realised most people don't. And I'm actually looking forward to just knowing it's there and doing it's job and not feeling it anymore. I known, ever since I was diagnosed, that MS lesions occur around veins, and have been waiting for research into this. This has been known in the medical community for decades - the theory that MS could have a vascular component was first put forward in the 1930s! Of course, the medical community is also impressively able to ignore stuff that doesn't make any "sense."

[kit_the_brave]

On one hand, that sounds a little scary, but on the other hand it's so much better to know what's really going on! I hope this leads to a good treatment plan soon - I'm sure that they'll be much better able to help now that they have something to go on!

[amamama]

Well, I've lived with it all my life, so I can manage a bit longer I think. But it explains why I've always crashed when it comes to exercise.