Comments | 65redroses: buckle up.

65redroses

buckle up.

Nov 23, 2009 21:35

i'm starting to try and find minutes to myself. moments in the day when silence will suffice. i have to relearn to be ok with me ( Read more... )

musings, transplant, grateful, cystic fibrosis

Comments 21

witchy_miss November 24 2009, 05:55:20 UTC

Very true. My doc said the exact same thing about CF patients a week before my transplant. It's a sign!...heh. But he did say that CF patients tend to keep their sense of humour even though we're really sick. The wait is long I know but you've been strong through out this whole thing. If not physically than emotionally and mentally. Christmas and New Years are coming up and you might get a present if you will. The holidays are the time for people to get transplants. I'm just crossing my fingers and hoping that we'll find a post on your journal saying that you got some news. I don't know you personally but I do know what you're going through and every day I pray that things will get better for you and your family and one day this will just be a distant memory for you. You're too young and too full of spirit to let this get the best of you.

Murielle

dig_your_self November 24 2009, 06:26:16 UTC

I'm sorry to sound so ignorant, but what is CF? I just found your journal and I've never heard of it before. Is it..terminal?

effervescent November 24 2009, 06:34:32 UTC

Cystic Fibrosis.

mmmaaadworld November 24 2009, 06:58:44 UTC

once again you put these ideas perfectly into words.
we joke because sometimes that's the only way to talk about cf without crying &hearts

anonymous November 24 2009, 08:02:58 UTC

I could totally copy and paste that into my blog! But I won't of course, its an Eva original. People often wonder how it is that I can be so close to people I've never actually met. And I tell them that no matter how close I get to someone they will never truly understand how CF makes me feel. Mentally, emotionally, and most of all physically. That's why I spend so much time talking to other CFers. I can talk about snot and poop without offending or grossing someone out. I don't have to try and explain the pain of pluerisy or the taste of mucus when you have a nasty infection breweing. And that's why I cry when one of my Cysters or fiBros is hurting, or dies. That's why I worry for them, and that's why I love them ( ... )

mmmaaadworld November 24 2009, 08:14:45 UTC

omg i love "Cysters" and "fiBros" that is the best terminology ever <3

ohsoawful November 24 2009, 19:13:10 UTC

i agree! that's awesome.

first comment anonymous November 24 2009, 08:20:25 UTC

"six dimensional in a sea of three" will likely remain with me for the rest of my life. I wrote in my High School yearbook that my objective was to be "two dimensional and live in a swamp". But in all seriousness, my strength to you though I may need a bit for myself. I had a kidney transplant 60 days ago. All is going well, and with love from family and friends -- not to mention my sister who gave me the kidney I am recovering very well ( ... )