Mixed Bag
Stuff is happening. Been busy, but also been sore, tired and as always, dealing with headache.
Christmas cake baking to happen today. Tins are lined with parchment paper. Fruit is soaking in brandy. However, I have to go to work for a bit, waiting for meds to arrive at pt's home. Meanwhile, I think I will rest on my bed, watch the snow falling on the river, maybe re-watch some Time Team.
I've been working on sooper seeekrit project. Iz excited.
Spent most of Thursday with dear nephew at Sick Kids. He has annual check ups post leukemia at age 3. He's 14 now and cured. Late effects from toxic shit injected into his veins and spinal fluid have to be assessed. Some issues with new school. Head doctor's comment, "staff from Sick Kids will go to the school and knock a few heads together" Despite being informed, new school is not providing him with the supports he needs and are his legal right. He looks 'normal', so teachers aren't being supportive, plus math teacher is total jerk.
He needs to accept the supports/accommodations he's being offered. However, being a teen in a new school, he doesn't want to be seen as different or disabled.
The docs are also going to get his neuropsych testing done soon. It's due, but he's on a waiting list. Sad that there are so many kids that need this.
Despite my health care experience, I'm always affected by what I see as I go down the halls of Sick Kids. Young kids casually dragging IV poles laden with pumps, bags of medications, blood transfusions and clip boards. Others with staggering physical disabilities, parents coping or not.
The always wonderful staff. At Sick Kids all staff are respected and involved. The study coordinator was trying to find a the tech for the exercise echocardiogram. Clerk at the desk pointed one way, but then the housekeeper piped up to say that the person was down the other hall. I've worked in lots of hospitals. In many the housekeeping staff are ignored and hug the walls, never speaking. In good hospitals they are equal members of the team caring for people and when that happens it makes a huge difference. Small things and big things. Noticing when there is a problem, anticipating needs and pitching in.
Stevie Ray agreed to join a study on heart damage post-chemo. He will have blood tests, echocardiograms annually and a one time exercise echo. The study folks thank the kids by providing gift card for itunes, books and volunteer hours for high school requirements.
Christmas cake baking to happen today. Tins are lined with parchment paper. Fruit is soaking in brandy. However, I have to go to work for a bit, waiting for meds to arrive at pt's home. Meanwhile, I think I will rest on my bed, watch the snow falling on the river, maybe re-watch some Time Team.
I've been working on sooper seeekrit project. Iz excited.
Spent most of Thursday with dear nephew at Sick Kids. He has annual check ups post leukemia at age 3. He's 14 now and cured. Late effects from toxic shit injected into his veins and spinal fluid have to be assessed. Some issues with new school. Head doctor's comment, "staff from Sick Kids will go to the school and knock a few heads together" Despite being informed, new school is not providing him with the supports he needs and are his legal right. He looks 'normal', so teachers aren't being supportive, plus math teacher is total jerk.
He needs to accept the supports/accommodations he's being offered. However, being a teen in a new school, he doesn't want to be seen as different or disabled.
The docs are also going to get his neuropsych testing done soon. It's due, but he's on a waiting list. Sad that there are so many kids that need this.
Despite my health care experience, I'm always affected by what I see as I go down the halls of Sick Kids. Young kids casually dragging IV poles laden with pumps, bags of medications, blood transfusions and clip boards. Others with staggering physical disabilities, parents coping or not.
The always wonderful staff. At Sick Kids all staff are respected and involved. The study coordinator was trying to find a the tech for the exercise echocardiogram. Clerk at the desk pointed one way, but then the housekeeper piped up to say that the person was down the other hall. I've worked in lots of hospitals. In many the housekeeping staff are ignored and hug the walls, never speaking. In good hospitals they are equal members of the team caring for people and when that happens it makes a huge difference. Small things and big things. Noticing when there is a problem, anticipating needs and pitching in.
Stevie Ray agreed to join a study on heart damage post-chemo. He will have blood tests, echocardiograms annually and a one time exercise echo. The study folks thank the kids by providing gift card for itunes, books and volunteer hours for high school requirements.