These were taken by a friend, John Walsh, who is a professional photographer. Thanks for doing such a great shoot with us, John!


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We finally caught up with Rob's oncologist who interpreted the PET scan from two weeks ago for us. Rob has put on a waiting list for a new clinical study. He may get called to go in for tests sometime in the next 2-8 weeks. He would be a good candidate, but he may be ineligible because of his participation in an earlier study. Read more at our ( Read more... )

It's all summed up in the first line of the report: "Mixed changes with however worsening of lymphoma."

Read the rest at the CaringBridge post here.

This entry was originally posted at http://pegkerr.dreamwidth.org/1751120.html. There are
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PET scan: liver glow GONE. Spleen glow GONE. Central glow deep in the abdomen (this is the one that really worried the doctor last time) GONE. Neck glow GONE. Slight glimmer on back of head remains, but no bigger than last time. New slight glimmer at tip of stomach: may be simply inflammation. Blood work looks perfect.

Our doctor said, "This is an ( Read more... )

The flu put me badly behind, but I'm not quite so far behind now.

Week 31: Minicon
We're there every year!


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Rob and I just came back from Rochester. We have a mixed report. New spots on his liver and spleen. Are they tumors or inflammation? We don't know. The one deep in his body is probably a tumor, as it's right at the site of the tumor that started it all, which had apparently been eliminated by radiation in early 2015. One glowy bit from the last ( Read more... )

We are back from a two day stay at Mayo. The latest PET scan and biopsy gave us good news, and we've learned some more about how truly fortunate Rob has been. You may read more at the CaringBridge link hereThis entry was originally posted at http://pegkerr.dreamwidth.org/1747049. ( Read more... )

Rob had another PET scan yesterday. The results were ... inconclusive. Difficult to interpret. His immunatherapy clinical trial continues. Read more at our CaringBridge account here.

This entry was originally posted at http://pegkerr.dreamwidth.org/1746352.html. There are
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Week 17: Biopsy
After the second of two biopsies, Rob hovers at the brink of awakening.


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At 5:00 a.m ( Read more... )