We finally caught up with Rob's oncologist who interpreted the PET scan from two weeks ago for us. Rob has put on a waiting list for a new clinical study. He may get called to go in for tests sometime in the next 2-8 weeks. He would be a good candidate, but he may be ineligible because of his participation in an earlier study. Read more at our ( Read more... )

It's all summed up in the first line of the report: "Mixed changes with however worsening of lymphoma."

Read the rest at the CaringBridge post here.

This entry was originally posted at http://pegkerr.dreamwidth.org/1751120.html. There are
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PET scan: liver glow GONE. Spleen glow GONE. Central glow deep in the abdomen (this is the one that really worried the doctor last time) GONE. Neck glow GONE. Slight glimmer on back of head remains, but no bigger than last time. New slight glimmer at tip of stomach: may be simply inflammation. Blood work looks perfect.

Our doctor said, "This is an ( Read more... )

Rob and I just came back from Rochester. We have a mixed report. New spots on his liver and spleen. Are they tumors or inflammation? We don't know. The one deep in his body is probably a tumor, as it's right at the site of the tumor that started it all, which had apparently been eliminated by radiation in early 2015. One glowy bit from the last ( Read more... )

Week 24: Hamilton
I have been listening to it NON-STOP!


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We are back from a two day stay at Mayo. The latest PET scan and biopsy gave us good news, and we've learned some more about how truly fortunate Rob has been. You may read more at the CaringBridge link hereThis entry was originally posted at http://pegkerr.dreamwidth.org/1747049. ( Read more... )

I fell asleep in the chair in the room where Rob was getting his infusion. Woke up hard after an hour with a series of cross and sleepy kitten noises, and Siri, on my iPod Touch, responded by telling me, "I'm sorry. I don't know what you're telling me ( Read more... )

I have been waiting to post these until we told the girls the latest medical results.

Week 15: Pain
Everything hurts.


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Rob's last PET scan was suspicious, and the most recent one, taken this month, was worse. Our doctors did a biopsy, and we received the results today. Rob's cancer has indeed come out of remission, although at least it hasn't reached his bones yet. He is starting an immunatherapy trial at Mayo Clinic next week. Read the details here at our ( Read more... )

We've had two trips to Mayo in the past two weeks and have received both good news and inconclusive news. Good news: surgical site (Athena's old quarters) is healing, and PET scans show old cancer sites are dark. Inconclusive news: there are some new glowing areas on the PET scan in his neck area...but we aren't sure whether it's cancer or not. ( Read more... )