injured myself last night. walking, standing, sitting etc is very painful. may be offline for a while.

[A Dreamwidth post with
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am working on Vividcon plans. we just spent 4 days trying to trap an injured feral cat on our property (we were successful. or rather all the people who did the work were. I was cheerleading and getting sunburned) so we've fallen waaaaay behind.  and today we are off to see a specialist that we've been trying to see for 10 months (he travels doing ( Read more... )

I am terrified and overwhelmed about the state of our nation, by the hate crimes, the loss of civil liberties, the cruelty and the dismantling of our democracy.  I feel powerless and small. I am disabled, the main provider and caretaker for my 80+ year old mother, and I have health issues that are starting to spiral out of control.

But I cannot not ( Read more... )

 Spent more time at my mom's this week as she's struggling with health issues.  
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 My positional vertigo is not gone but lies lurking, ready to jump out at me like a jack in the box. Flying in planes and looking up or down seems to trigger it. The anti-vomiting meds are still effective.

I have had right ankle problems since April and have been working with a podiatrist to find a pair of shoes that will cushion my feet more. I ( Read more... )

 I always hate blogging about personal health stuff - or I have started to hate it as the years go by. But here goes ( Read more... )

"CSF presents Prevalence of Hypermobility" starts at 18 minutes. Prof. Rodney Grahame’s talk about the prevalence of this condition at the 2013 CSF Craniocervical Instability Colloquium.

Click to view

(Direct link)

And two slides (note: they are very large)

Slide 1
Slide 2

[A Dreamwidth post with
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I've read that fans are trying to post to DW/LJ every day for the month of Sept. I am not certain that is doable for me, for various reasons, but I salute you!

1. Home repairs start Friday (the POD storage unit is being delivered). I am, frustrated with how little I can do to help/participate - have already hurt myself several times these past weeks ( Read more... )

Ehlers-Danlos National Foundation Center for Research and Clinical Care at GBMC's Harvey Institute for Human Genetics to Open August 16

The Ehlers-Danlos National Foundation (EDNF) is proud to announce the upcoming opening of its first center, the Ehlers-Danlos National Foundation Center for Research and Clinical Care at Greater Baltimore ( Read more... )

Help a woman with Ehlers-Danlos Syndrome move into an accessible apartment in Munich Germany. For those of you who do not live in Europe, many renters must "buy" or pay for "fixtures" (the kitchen and the washing machine) before they move in.
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