Cut My Head Open!!

Apr 13, 2007 01:02

If it wasn't for the way that life gets fucked up all the time, I would have had surgery earlier this year. But, no I get left to suffer once again ( Read more... )

book, pain, health insurance, atypical trigeminal neuralgia, tn2, surgery

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lilystcyr April 17 2007, 04:01:40 UTC
Thank you so much Tessa... it means SO much to me that you care. Not just that, but that you actually know what is wrong with me. I don't want people to pity me, but I want so much for them to understand what is wrong with me.

It's so true that if someone can't SEE a physical ailment, that they don't believe it is there. Of course I'm not speaking for everyone. Most people either don't know what is wrong with me, or they don't even know there is anything wrong with me because I've learned to hide it so well.

I used to scream, cry and complain about it a lot, but people don't want to hear that shit. Plus, I learned to tolerate it, because I HAD too. I want a normal life and I am trying like hell to accomplish that.

I think I'm going off on some kind of tangent...

It has always made me happy that you actually KNOW what is wrong with me. You are probably the only one in the family that does. Mom's jaw hit the floor when she went up to U of Penn with me once and they were talking about neurosurgery with her. She had NO clue that I needed my head cut open. Oh, tangent again...

One more thing... You know that I care about with all my heart and it's nice to hear that it does help you in some way. You WILL get through this. Love ya little sis.

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