(no subject)
phoned the doc. The barium contrast CT scan came back fine. I'm not sure that it actually rules out diverticulitus because everything I read online said you needed a bunch of other tests for that. I'm glad that there isn't anything wrong with my kidneys or liver but that wasn't actually anything I was worried about.
Thing is I'm still in a lot of pain and discomfort. I didn't just go in with this because I had a twinge. I've had bad pain for over 6 months. The past three months it's been so bad that I can't sit for long at all and I'm in pain with it constantly. Some days are worse than others but it's always there.
I do very little in my life because of the migraines, fatigue and join/muscle/nerve pain. The things I do do, read, draw, paint, knit, spin, felt, they all need me to be able to sit for more than 10 mins without crippling pain and discomfort. I put up with lots of pain every day. There is a limit to how much you can deal with. And my doctors don't seem to care at all.
I just have no idea what to fucking do any more. I'll have to call and talk to the physio.
Everything is so hard. I don't have anywhere near the help I need. I don't have the money to get treatments and adaptive equipment I need. I need a wheelchair, I need a foam wedge for my chair, I need to get to see the POTS specialist, I need to see an ophthalmologist, I need to get splints for my fingers, I need to get back to hydro, I have an upcoming genetic specialist appointment to try and get a proper EDS diagnosis. All things that need way more money than I have (specialists cost hundreds of dollars and so do wheelchairs, the foam wedge is over $150). Already spent thousands on all the car repairs and owe Ruth's mum for a bunch of that. They also all need me to make phone calls etc and that's just so fucking hard for me to do.
I have a bunch of ideas for fandom embroideries and needle felts but ugh.
I can't manage to get anywhere. There are a bunch of shops I want to get to for food (can't get the local fruit from the place we used to go as it closed down) and arts things I'd love to go to. I can't even shower more than once a week. A bath would probably help with this abdominal pain but we don't have one. Muscle relaxants would help with the pain too but they wont give them out, they wont even let me stay on the patches. I can't manage to keep the kitchen clean enough to be workable. We really need to get to the tip with the rubbish but haven't managed that either. We have Mardi Gras coming up in March. Need to get the dog vaccinated, pay for dog boarding and hotel and petrol and cross everything we can that the car doesn't have any more problems.
Thing is I'm still in a lot of pain and discomfort. I didn't just go in with this because I had a twinge. I've had bad pain for over 6 months. The past three months it's been so bad that I can't sit for long at all and I'm in pain with it constantly. Some days are worse than others but it's always there.
I do very little in my life because of the migraines, fatigue and join/muscle/nerve pain. The things I do do, read, draw, paint, knit, spin, felt, they all need me to be able to sit for more than 10 mins without crippling pain and discomfort. I put up with lots of pain every day. There is a limit to how much you can deal with. And my doctors don't seem to care at all.
I just have no idea what to fucking do any more. I'll have to call and talk to the physio.
Everything is so hard. I don't have anywhere near the help I need. I don't have the money to get treatments and adaptive equipment I need. I need a wheelchair, I need a foam wedge for my chair, I need to get to see the POTS specialist, I need to see an ophthalmologist, I need to get splints for my fingers, I need to get back to hydro, I have an upcoming genetic specialist appointment to try and get a proper EDS diagnosis. All things that need way more money than I have (specialists cost hundreds of dollars and so do wheelchairs, the foam wedge is over $150). Already spent thousands on all the car repairs and owe Ruth's mum for a bunch of that. They also all need me to make phone calls etc and that's just so fucking hard for me to do.
I have a bunch of ideas for fandom embroideries and needle felts but ugh.
I can't manage to get anywhere. There are a bunch of shops I want to get to for food (can't get the local fruit from the place we used to go as it closed down) and arts things I'd love to go to. I can't even shower more than once a week. A bath would probably help with this abdominal pain but we don't have one. Muscle relaxants would help with the pain too but they wont give them out, they wont even let me stay on the patches. I can't manage to keep the kitchen clean enough to be workable. We really need to get to the tip with the rubbish but haven't managed that either. We have Mardi Gras coming up in March. Need to get the dog vaccinated, pay for dog boarding and hotel and petrol and cross everything we can that the car doesn't have any more problems.