Great Strides!!
I mentioned in my alphabet post that I was heading to Texas in May...and that I would tell you more about that later. How about I do that now?
Okay, then, I'm here to let you know that Jenny, Daniel and I will be making the trip to Texas to walk in the Great Strides walk for Cystic Fibrosis on May 17th!! (Jack & Katie both have to work, so they won't be able to make the trip with us, but they will be there in spirit!)
So why are we driving 1200 miles just to be part of a walk that we could do right here in Raleigh? Because by going to Texas, we get to share the walk with
tapestrymlp and her beautiful daughter Cassie, who will be celebrating her 4th birthday that same day. Cassie was diagnosed with CF three years ago and she and her parents have dealt with the disease (including four surgeries, twelve daily medications and daily breathing treatments) with amazing positivity, patience and courage.
Cystic Fibrosis is a life-shortening illness, but the Cystic Fibrosis Foundation is working hard to change that. When I was young, CF patients rarely lived past their teens and now the average life expectancy is 37. Hopefully, when Cassie reaches that age, the disease will have been beaten and she can say it was just something she used to have when she was little. And I guess that’s really why we’re walking...to help give her that chance.
If you’d like to make a contribution to our efforts, you can find our family fund-raising page here.
We greatly appreciate every contribution, even if it's only a few dollars! (No pressure, of course - we realize lots of folks are overcommitted already!)
*hugs*
Okay, then, I'm here to let you know that Jenny, Daniel and I will be making the trip to Texas to walk in the Great Strides walk for Cystic Fibrosis on May 17th!! (Jack & Katie both have to work, so they won't be able to make the trip with us, but they will be there in spirit!)
So why are we driving 1200 miles just to be part of a walk that we could do right here in Raleigh? Because by going to Texas, we get to share the walk with
tapestrymlp and her beautiful daughter Cassie, who will be celebrating her 4th birthday that same day. Cassie was diagnosed with CF three years ago and she and her parents have dealt with the disease (including four surgeries, twelve daily medications and daily breathing treatments) with amazing positivity, patience and courage.
Cystic Fibrosis is a life-shortening illness, but the Cystic Fibrosis Foundation is working hard to change that. When I was young, CF patients rarely lived past their teens and now the average life expectancy is 37. Hopefully, when Cassie reaches that age, the disease will have been beaten and she can say it was just something she used to have when she was little. And I guess that’s really why we’re walking...to help give her that chance.
If you’d like to make a contribution to our efforts, you can find our family fund-raising page here.
We greatly appreciate every contribution, even if it's only a few dollars! (No pressure, of course - we realize lots of folks are overcommitted already!)
*hugs*