Had nerve pain bad enough to keep me awake most of last night.  And it's pretty bad today too.  It's probably just a flare-up and the pain won't be constant at this level yet but even so, it's progressing a lot faster than the last tumor I had. If it keeps progressing at this rate I'll probably be back on the cane in 6 mo to a year.  Not cool ( Read more... )

I'm getting really sick of the health stuff recently. I just spent the last 3 days with a stiff back and neck such that I could barely turn my head for the pain and I couldn't sleep comfortably at all. I hate begging my doctor for medication, but I think I'm going to call him and see if I can get a muscle relaxer. It's a little better this ( Read more... )

Dammit dammit dammit. Shit shit shit.

So yeah. Last night the nerve pain in my right leg was back with a vengeance, strong enough to keep me up. I didn't get to sleep until some time past 6am (thank the gods today is Sunday).

[For those of you who haven't been reading me for years and don't know what I'm talking about, read hereIbuprofen ( Read more... )

I have an invisible illness. Well, actually I have several, but there is one in particular I want to talk about, one that newer readers might not even know about, because I have been in something close to "remission" since the surgery I had March 2008. This does *not* mean I'm cured for life. In fact, it's already starting to be a problem again ( Read more... )

A brief history for those who have not been reading me for a full year and a refresher for those who have ( Read more... )

I find it amusing that there is a billboard for the Children's Tumor Foundation that just went up on my way to work and says something like "What will you do when you find out your child has Neurofibromatosis?". Neurofibromatosis is what I have, and prior to being diagnosed with it, I had never even heard of it. Now it looks like it's all over ( Read more... )

So last night I actually did have some definite sciatica pains. But they didn't last long, and I really think that it was simply due to having to spend so much time on my back, which would irritate anyone's sciatic nerve ( Read more... )

Sleep: 10:30pm to 2:30am, 4am to 10:30am

Pain: Ha! Don't have to do this any more! YAY!

Weather: clear and sunny, 69F, 56% humidity, high 69F
Daily BPAL: FAMINE ( Read more... )

So the surgery went very well. I had my moments of freak out, but when all is said and done it wasn't as bad as I was afraid it would be. The surgeon said that the tumor was easier to remove than he was expecting, and I have not had a twinge of nerve pain since I woke up. The incision hurts plenty, but the nerve pain is gone. So that is a very ( Read more... )

Sleep: 12am to 7am

Pain: 7-8

Weather: clear, 57F, 47% humidity, high 67F
Daily BPAL: PEACOCK QUEEN 2007 ( Read more... )