Tumour in Emmerdale

[sammason]

In the UK soap opera I watch, Emmerdale, a story is going on about a brain tumour. As so often, they're not telling us what will happen, and I usually prefer not to know in advance. If you don't want to know what happened a few weeks ago, don't click this link.I've no personal experience, unlike the actor whose character (Brenda) has the tumour.

Comments

[deborahw37]

I'm lucky in that nobody has offered me snake oil. There were some strange things I ran across on the internet, some of which ( ice) was helpful, some of which was just weird!

My GP discussed the diagnosis and the available drug therapies with me and was supportive in the choice I made not to medicate but to go with diet, physio and pacing. We review this whenever I see him but I generally don't go to see him about the MS and he understands that.

He's less understanding about my refusal to see the neurologist... I went to see the consultant neurologist prior to diagnosis and he emerged from the woodwork when I was hospitalised following an accident.. he wanted me to see him before I was discharged but since he wasn't back on the wards till the Monday and I was desperate to get out on the Friday I discharged myself... that got me a telling off but honestly.. there's no cure I can't beat this, I can only live as well as I can with this and if I choose not to track lesions or whatever that's a valid choice.

The best advice I ever got was from my physio " If you want to keep moving, keep moving!"

That obviously does not apply to everyone but it was a key message in my particular case.

I don't go to MS boards or forums a lot because I find that people think I'm recommending my choices to them and I've had long diatribes about the folly of choosing not to take the meds . My stance is that I looked, I researched and I chose but each person must do their own research and take advice and make their own choice.

[fallconsmate]

see, your stance makes sense to me. you DID the research, and know what you are willing to do. if you change your mind at a later date should your symptoms become more severe, that's fine too, you're still making an INFORMED decision.

other people may disagree, but it's YOUR body and you are in charge of it.

[deborahw37]

Thank you!

I've been lucky and it's worked pretty well... of course I'll never know f it would have been better with the meds but it was an informed choice and that's the important thing to me