A tragic outcome
the final diagnostic after they analized my case at the hospital was...horrible.
I am sick, very sick, as in a chronic incurable degenerative brain disease.
There is no known cure, it occurs in young people (20+), and is more common in women. Any neurological symptom can appear with the disease, from physical (like my hands mainly now, though my legs/back/neck are also hurting now, it's gotten worst) to cognitive (attention, remembering, producing and understanding language, solving problems, making decisions...) disability. It works in waves of relaps/crisis that happen completely randomly and can touch any part of me in any possible way, the time for recuperation is unknown, the time between relapses is unknown, whether I will react well to the medication or not is unknown, how many scars/sequelae I will be left after each relaps is also unknown, we just know there will necessarily be sequelae: meaning right now, my hands might never go back to what they were ever again already. The life expectancy of people with this disease is generally 5-10 years shorter than others. And of course, the medications used to 'treat' it is very violent and have adverse reactions on others parts of my body.
What can I say? When I went to the hospital because of some hands problems, I certainly didn't except to have such a thing being blown to my face, that's for sure.
And so, that's it.
This journal was never meant to be a personal diary, it's a place dedicated to my fandoms and online life, even though I did talk here and there about my life of course, and it will continue being that way from now on too~ So unless it's some marking events, you won't be hearing me making a drama of my life.
I am sick, very sick, as in a chronic incurable degenerative brain disease.
There is no known cure, it occurs in young people (20+), and is more common in women. Any neurological symptom can appear with the disease, from physical (like my hands mainly now, though my legs/back/neck are also hurting now, it's gotten worst) to cognitive (attention, remembering, producing and understanding language, solving problems, making decisions...) disability. It works in waves of relaps/crisis that happen completely randomly and can touch any part of me in any possible way, the time for recuperation is unknown, the time between relapses is unknown, whether I will react well to the medication or not is unknown, how many scars/sequelae I will be left after each relaps is also unknown, we just know there will necessarily be sequelae: meaning right now, my hands might never go back to what they were ever again already. The life expectancy of people with this disease is generally 5-10 years shorter than others. And of course, the medications used to 'treat' it is very violent and have adverse reactions on others parts of my body.
What can I say? When I went to the hospital because of some hands problems, I certainly didn't except to have such a thing being blown to my face, that's for sure.
And so, that's it.
This journal was never meant to be a personal diary, it's a place dedicated to my fandoms and online life, even though I did talk here and there about my life of course, and it will continue being that way from now on too~ So unless it's some marking events, you won't be hearing me making a drama of my life.