I am so sorry to hear that. I feel like saying keep your chin up, but I know that must sound like shallow advice right now. Just remember that you can always come here for support when you need it. I wish you all the best.
Is that true? I am so sad reading that. Really. :( I hope your brain won't degenerate so quick. I want you to be able to do things like before.. Idk, this reminds me of 1 Litre of Tears :(
'Is that true?', I think I asked myself that a billion time, it just didn't feel 'real': someone like me who comes from an exceptionally healthy family (all my relatives/family members are in incredibly good health, age slowly and live very long and while, of course, they have their share of 'normal' illnesses like any other people, but they were never nothing truly serious in the past x generations), so yeah, with a super powerful genetic heritage like that and the fact I never had anything at all for the past 26 years (right now was my very first time at a hospital...), for me to be diagnostic in a matter of days with something so huge left me with my mouth hanging, literally.
I'm getting used to it right now, or at least trying that is, and lift up my head once again, I certainly won't be controlled by this disease and don't worry, my brain won't melt down that fast, it would take many years ;) Or at least I hope ^^; There are too many things unknown to be able to tell truly...it's like a lottery.
I'm awful when it comes to comforting words, but I really do hope it's not getting you so down that you're not able to enjoy your everyday life. It's important that you do your best to, and if that means letting off a little steam on LJ every now and then, then by all means do so!
Thank you for cheering me on, I am very grateful! As I said to a previous poster, every word of support is priceless, it really doesn't need to be some incredible lines or anything, actually, the fact in itself you took the time to stop by and write is already making me feel very happy ^^
My crisis is calming down and I've been feeling better the past couple of days, the problem if course if the 'incurable' and 'degenerative' part of this disease, meaning I will inevitably have other crisis in the future, and it will get worst and worst. I can only hope I will be left with the minimum sequelea possible, and ones that wouldn't hinder dramatically my everyday life.
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It is not shallow advise at all, every word right now from my friends and family is priceless, I shall fight on!
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I hope your brain won't degenerate so quick. I want you to be able to do things like before..
Idk, this reminds me of 1 Litre of Tears :(
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I'm getting used to it right now, or at least trying that is, and lift up my head once again, I certainly won't be controlled by this disease and don't worry, my brain won't melt down that fast, it would take many years ;) Or at least I hope ^^; There are too many things unknown to be able to tell truly...it's like a lottery.
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I'm awful when it comes to comforting words, but I really do hope it's not getting you so down that you're not able to enjoy your everyday life. It's important that you do your best to, and if that means letting off a little steam on LJ every now and then, then by all means do so!
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My crisis is calming down and I've been feeling better the past couple of days, the problem if course if the 'incurable' and 'degenerative' part of this disease, meaning I will inevitably have other crisis in the future, and it will get worst and worst. I can only hope I will be left with the minimum sequelea possible, and ones that wouldn't hinder dramatically my everyday life.
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