My general physician refuses to referr me for hyperbaric oxygen for what I agree is totally valid reasons, unless my neurologist and pain specialist both think it's okay. I just finished a scholarly article saying that there were no conclusive findings or great evidence that it did anything for brain damage. But we'll see what the other doctors ( Read more... )

I often "cross post" between here and Facebook, since sometimes stuff I say there, in increments, can be transferred here as stories and ruminations ( Read more... )

Reposted from Facebook, because dear mighty Isis, I am so exhausted ( Read more... )

I have learned this: I am good at pretending to be "normal" while my inner self cries out in fear and terror and anxiety and self-loathing, curling up against the rockiness of my scarred brain, shivering with open wounds from various hard scoldings that take the psychic form of beatings. I admit, I am a child in so many ways. I still do not know ( Read more... )

Also, I am on slightly higher doses of drugs to ease the migraine, the anxiety, the OCD, the ADD, the potential return of depression and seizures, the spasticity, and the dreaded lumbar pain. So if anyone tries to talk to me, my voice or fingers may argl blarg wagl mluh. Just a little ( Read more... )

My initial physical therapy visit was so wonderful, they've set me up for more therapy two times a week for the rest of the month. Physical stretches and exercises with Dolores and Carolyn, biofeedback and meditation with Mercedes, and so on ( Read more... )

Oh, hey, specialized physical therapy specializing specifically in fibromyalgia. Look at that. I'll have fun with that on Wednesday. I would love to know what the mocking crowd thinks about that ( Read more... )

Well, what do you know. The pain specialist nurse informed me that my stabby electric knee pain is totally a symptom of fibromyalgia. And it took me saying "Wait, really? Seriously? Are you sure?" before she started laughing. Also, my stabby electric wrist pains are a symptom of ulnar entrapment, and the doctors are going to give me a nerve test ( Read more... )

Also, I have an Ace bandage wrapped around my left wrist, arm, and hand because OMG PAIN leaving me sobbing wildly. It is mostly likely from repetitive strain injuries, because in the last few days I have been using my left hand more and more in ways it is not used to. Tonight will be a codeine with acetaminophen night ( Read more... )

Yup, the Baclofen is still working, and I am still in shock about it. I am really really not used to my left side feeling this loose and calm. Not even any tiny spasms in my fingers. Plus, I can drum my fingers on a table with each finger individually and with almost no pain (!!!) - that was always my main indicator. See, it's fairly simple to drum ( Read more... )