Comments | vitiligo: Ultimate Vent/ Get to Know

monihkahh in vitiligo

Ultimate Vent/ Get to Know

Sep 07, 2008 23:17

I've had vitiligo since I was about 8 years old.

In third grade, a girl who i absolutely hated started teasing me in the girls restroom about some "freak white spot" on my neck. I didn't believe her.
I went home and asked my mom, you know, just in case, and she confirmed it. There was some random "freak white spot" on my neck.

From there I started ( Read more... )

Comments 25

Hello ash_78 September 8 2008, 09:08:40 UTC

Hi there ( ... )

Re: Hello ash_78 August 4 2010, 13:47:21 UTC

Hi,
How you going with vitiligo? I am also suffering from it from last 22 years and now it has come to my face and i have started loosing my confidence. I don't feeling like seeing myself in mirror.
Just wondering if any medicine helps you or not.
I tried all sort of medicine in last 22 year, but nothing worked for me. But for some people some medicine worked.

crowded_avenue September 9 2008, 03:05:42 UTC

I have it on my head, so it makes my hair turn gray.. i hadn't dyed my hair for a long time and someone at work told me everyone had been talking about how freaky it is I have dramatic gray spots in my head.. Whatevs.. I dyed it today, so hopefully they'll quit talking.

I've been lucky that it hasn't spread. knock on wood.

I feel your pain. It can be humiliating. I've just become a huge fan of Covergirl.. LOL

stay strong! xoxo

monihkahh September 9 2008, 05:11:54 UTC

try MAC
its also wonderful....i dye my hair also.
its fun and looks good and fixes the gray issue

crowded_avenue September 9 2008, 05:13:52 UTC

ohhhh i love MAC too!

Understanding the Ultimate Vent heath27 September 13 2008, 18:16:53 UTC

I just read your post and I have to tell you, my heart aches for you ( ... )

anonymous September 21 2008, 19:54:50 UTC

Hi there! I suffer vitiligo 2. Mine started whn i was around 5 im now 25,over the years it has rlly cut down touch wood. Hav faith in god it rily helps! I rilly controlled my diet by not eatn anythn sour as told by my docs, and even stopped swimming. I did urine therapy which rily helped me, they say that the 1st urine u pas out whn u arise in the mornin is very gud, drink it if u can and take some sorbet after to get rid of the taste, or alternatively store them in smal cups in direct sunlight 4 bout 3-4 days and then apply 2 ur patches, it makes alot of a diff. It sounds disgustin but ive dne it and it rily helped. I am also taking tablets called dermoluconil its 4rm india and is quite good, im stil taking it. Wish u all the best. Please do not hesitate to try thm im speaking 4rm experience and knw wat u feel. Gud luk.

Hi anonymous August 4 2010, 13:28:09 UTC

Are u still pracicing Urine therapy? Can you please provide update whether urine therapy helped you in curing the vitiligo or not. As i am thinking to give it a try for my vitiligo.

Hey anonymous October 15 2008, 00:49:04 UTC

I've had vitligo since I was born and from the earliest years, I remember my mom always telling me to be thankful that I was born healthy; that there were people who have it worse ( ... )

Re: Hey monihkahh October 15 2008, 01:02:43 UTC

True.
Much easier said than done. I'm glad you don't let it handicap you.
I'm working on it, slowly but surely.
I'd love to chat sometime. Add me on LJ or IM me sometime (monihkahh)

Monica