pain update

[tunes84]

I've been thinking of how to start this post over the past hour, and I realized that every time I went over it in my head, it started out as an apology. It was an apology for being absent, an apology for how whiny I think my pain posts are, for how I've neglected my journal. And while it sucks that I've not been on and I've surely missed out on a

Comments

[patster223]

God do I freaking love and adore you, Jenny. Thank you for always trying, you're the light of my life *hugs*

[tunes84]

My sweet pat, I love you so very much. <3

[tunes84]

You mean so much to me, RP. The fact that you are always here for me is also inspiring and beautiful and wonderful and my shitty hand can suck it because I have the best friends in the world. <3

[primrose_1]

I think that trying to do what "normal" people do is setting yourself up for failure. You're not normal, you're extraordinary with a set of challenges different from the average person. Have a day that's normal for YOU, right now. If that means you get dressed and that's it, hey, take it because maybe other days you don't manage that. Beating yourself up over what you CAN'T do means you're not recognizing the things you CAN.

Have you looked into getting on disability? Medicare?

[tunes84]

You always inspire me to keep trying.

I've looked into many different possibilities like that, and nothing has come from any of them so far. It's a long process, and I'm just not lucky with it just yet.

[primrose_1]

I'm frustrated that there aren't any easier answers for you. I'm sure you're BEYOND frustrated :) I want to be able to wave a magic wand and make it all better. You're definitely helping me to understand this condition better. One of my girl's friends has it, and she ended up having to drop out of college for a semester because she just couldn't get to class. I have to admit, I had a hard time understanding it. You're definitely showing me how to be more understanding and compassionate about others struggles. My current physical troubles don't include me being unable to get to where I need to be. Mine just include falling asleep while I'm there in the middle of doing it. :)

Yes, of course keep trying! You're going to get it figured out, and things will get better. I know this. I'm praying for you, lady!

[s0mmer]

I'm right there with you, struggling every day just to survive. And that's a huge accomplishment! It may not seem like it, but based on the amount of effort expended you're building a pyramid singlehandedly.

The point of my life is being a good friend. There are stretches where I barely leave the house, but there are also times when I can get out. Friends come over and visit. If there's a tragedy I'm available.

Try to enjoy yourself :) If it weren't you but a friend, how would you see and treat that person? Aim to be as kind to yourself as you are to others.

ETA: PM me if you're interested in a great chronic illness support group.

[tunes84]

Thank you for the comment. It really is a struggle to survive each day, and I'm trying to definitely be nicer to myself than I have in the past. It's hard, but I'm trying.

I really would be interested in a support group. You can PM me the details if you want? That would be really great to be a part of.

[meg_tdj]

*hugs*

[tunes84]

sorry for never replying. <33333333333