POTS

[tudorpot]

Karma sucks. On Friday I had a consult with a cardiogist who specialises in irregular heart beats - Arrythmias. I told him my story, he did some tests and gave me a diagnosis. No, I didn't tell him my LJ user name. I've got POTS - Postural Orthostatic Tachycardia Syndrome. This is why I fell down in Paris - my brain wasn't getting enough blood so I

Comments

[lookfar]

Awww shit. POTS. It's weirdly disabling as you say, because it is invisible. And sort of unpredictable, I think. I'm sorry that's it. Sucks. Can you eat the salt on a lot of potato chips? I'm so sorry.

[tudorpot]

Thanks so much. Food doesn't taste right, I make stuff and then don't like it.

[lookfar]

I sent you a useful little book about being sick. It's a book I really like, maybe you can find some little bit of help in it.

[imhilien]

*gentle hugs* I hope you will get better from POTS.

Having an invisible illness is horrible - you can feel ill, but you don't always look ill. :(

[tudorpot]

Yup, that's it, I don't look ill, some days I can do most things. Problem is the next few days I pay for it in pain and fatigue. thanks so much

[dickgloucester]

*hugs you hard* My fingers are crossed that the medications DO help, that salt helps, that at some point you will be able to get a little exercise.

Of course you're not happy. Who would be?

[tudorpot]

Thanks so much. It's good to know what is wrong, it's been a huge problem trying to find someone to tell me it's not all in my head.

[lifeasanamazon]

Much love to you.

[tudorpot]

so kind, fond memories of our lunch together