NOAH

Jul 18, 2008 23:19

I am part of an organisation called NOAH (national Organization of albinism and hypo pigmintation). I am on a web board that people with albinism or parents of children with it or people just wanting know more about it, call talk. There are a few catigories like any web board, and i sift through all of them often ( Read more... )

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_influx_ July 20 2008, 07:58:07 UTC
I have albinism too and I have to say that, to me, NOAH is totally annoying :) It seems to be a place where everyone freaks out and no one actually does anything.

I say, go for it and apply! You may as well give it a shot. And you may actually make some kind of difference in the organization.

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sundancer128 July 21 2008, 02:04:54 UTC
Thanks so much! Two people have already nominated me. I wrote a long post about my concerns about NOAH, and people are all agreeing! Hopefully I can get on it, or at least talk to them about what every one WITH albinism is feeling.

!Megs

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