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Oct 13, 2013 18:24


Struggling today. Day by day I'm coping.

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Comments 5

twistedcysta65 October 16 2013, 02:38:04 UTC
Dear Kina,
I am new to this site, I wanted to find you and tell you that your amazing. I watched the documentary tonight and cried. I also have Cystic Fibrosis. I'm 28, doing pretty decent to say the least. The documentary, you and eva opened my eyes to the transplant world. I thought that having a transplant would take away all of my problems. I see now that it wouldn't. My thoughts are with you as we both struggle. I know only 2 people with CF, my cousins daughter, whom of course, I have never met. And a young woman I met on facebook. I am hoping to meet more people, people like me. I don't have a supportive background, just my husband and my son. I wish you well and I hope tomorrow is better for you. Much <3
TwistedCysta65 aka Betty.

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breathlessroses October 16 2013, 03:17:42 UTC
Dear Kina,
I am new to this site and I was watching 65 Red Roses the other day and it made me cry. I was hoping by the end of the film that Eva and Meg would still be around so I can talk to them as well but they are not. I'm sorry that you have lost such good friends. But I also have CF and it's hard, but I'm glad that you are still here. I know that times can be so rough but you can push through, I believe in you!
Signing out,
Kayla

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tallblue October 16 2013, 04:48:42 UTC
I am so sorry to read the post before this one. I pray that the nodules will be nothing and even disappear! (hugs) I wish I could hear from you more often, but I understand all that you are going through. Know that I care about you!

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ext_2223021 October 17 2013, 04:20:37 UTC
Kina- Your one of the strongest people I have "never" met. The honesty that you bring to the table each time you Blog or discuss your day with CF ...it's so Huge. My name is Christa and I;m from KY...oh yah I said it KENTUCKY....Let me rest your mind (I do wear shoes and have a slight twang in my voice). I don't pretend to know anything about CF other than you seem to be a a great girl with CF. As weird as that must sound I have read some of your blogs and you keep it real. Everyone deserves to have at least one friend somewhere close to them that the "stories" and life changing events they share are no more than simply true. I am a rambler at times, sorry...but I am here if you get the card that says "talk to a strange KY girl". I 'm I also send my well wishes and prayers, may each prayer cushion you in some small way.

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lupagreenwolf October 22 2013, 18:51:34 UTC
I'm not on LJ much any more, but I wanted to stop by and give you a ***hug***. Wishing you strength and wellness.

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