(Untitled)

Aug 30, 2017 12:06

So I guess it's worth pointing out that I'm still alive and stuff. Made it to 38 today. And I wish I wasn't so exhausted and ill that I could enjoy it better, but I guess it's better than... not being around, I suppose. Feel so, so tired, but I guess that surviving for so long what with all the crap the world's thrown at me (whether it's bodily ( Read more... )

fandom, birthdays, friendship, me

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rob_t_firefly September 11 2017, 17:52:39 UTC
it seems like it's only the really crazy people who come up and talk to you anymore.

Reporting for duty, ma'am!

Happy belated thingy. I've missed you!

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snowgrouse September 11 2017, 18:29:48 UTC
*Hugs* I've missed you, too. Was just thinking of you the other day and wondering how you were. Hope all is well!

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angeweeks April 11 2018, 21:01:38 UTC
I STILL LOVE YOOOOOOOU

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snowgrouse April 12 2018, 09:10:16 UTC
*GLOMPS HOMOSEXUALLY* I LOVE YOU TOO.

I was just reading this long-ass academic article on endometriosis pain a couple of days ago and I thought of you several times, because it's one of those few sources which talks about how the pain doesn't necessarily go away even if the seeming (visible) causes are removed. I was like "fuck, this is what Ange has been saying all this time!" I'm thinking of a way to send that to my pain clinic because what they're giving me isn't adequate for breakthrough pain (meaning periods). But it goes into good detail about how the nerves (and the whole CNS) are permanently irritated by endo even in the absence of lesions and even lady parts (probably by estrogen and some other crap in peritoneal fluid that constantly irritates the innards like fucking chili sauce?), and how it really is *not* in our heads. *BIG SQUISHY FUCKING HUGS* I read your new post and will try and reply to that soonish (if not, poke me).

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Imma gonna poke you anyway heh heh heh angeweeks April 12 2018, 17:19:52 UTC
I'm having a hell of a time trying to get medical professionals to understand that I may have had a full hysterectomy 7 years ago, but the Consultant I was under was very clear in saying he could not remove all of the endometrial material, as to do so he would have had to give me a colostomy bag. And of course all of the operations and procedures I had in the lady-garden area are what has given me the fibromyalgia/neuropathic pain; I have damage to the nerves in there and also the other bits of endometriosis knocking about, and that is where the highest concentration of pain is. BUT THEY WILL NOT LISTEN... SO MANY BIG SQUISHY HUGS FOR YOU TOOOOOOOO <3

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