I'm sorry, I have no direct help, but wow that sounds horrible! You have my empathy and my wishes for improvement, or at least the best situation possible given your current condition.
Oh dear, my heart goes out to you! Is there a pain management center close to you? We have one at the University of Rochester which I understand has helped a lot of people with alternative pain needs. Question: I'm moving toward celebrex (I am taking methx for RA and vicoprofen for pain--both barely doing the job) and have heard celebrex is better--how do you react to it? And, is it possible you can get a higher dosage?
thanks for your heart feelings, i appreciate them. i live in a rural area. i know there is a pain clinic about two hours from here in my capital city, and i travel there at least once a month to see my psychologist. i will investigate a referral to it.
celebrex: the way i understand it, it's a very different drug to mtx. mtx has kept my swelling down a bit over the longterm, but celebrex is like a day to day type thing. it did eventually burn a hole in my gut after 10 years or so of taking it, but they were GREAT years.
it worked well for me. it certainly helped with the swelling. i was on 200mg daily, which is what i think was the upper limit. i took a break from it and in conjunction with the doctors, have decided to try 100mg/daily with nexium for the gut.
also it's apparently one of the more gentler NSAIDS for the gut. i wish you the very best of luck with it!
Just a thought--are you by any chance on prilosec (omeprazole)? A dr. friend suggested it for long-term nsaid use and I haven't had a gut problem yet after a few years of being on it. My dr. gives me a prescription so it's lots cheaper than buying it over the counter, even the generic.
thanks for your sentiment! yeah, i wish i had an answer too. i guess i came here for some ideas around alternatives, peoples experiences of what i'm headed for (like what it's like to live with a spine that you can't stand up straight with) and pain med choices.
biologics aren't an option for me because of an infectious disease and heart problem i have. a bit of a drag. luckily the ID isn't anything serious, it's a big staph infection i picked up in a hospital from a surgery, but i does come up every now and then so it's certainly active. blah blah blah.
so glad to hear the humira is being awesome to you! SO HAPPY FOR YE!
Panadeine Forte contains an opiate (codeine), so I'm not sure how you are taking that if you are allergic?
The only non narcotic (opiates or opiods) drugs are NSAID's and medications that can treat nerve pain. I am taking Neurontin for my fibromyalgia and find it quite effective. I hope you'll get to see an orthopedic doctor to help address the osteoporosis, that is just awful. I think they do have some effective treatments for that now however.
Getting a referral to a pain clinic sounds like your best option. Good luck.
yep, PF does contain codeine... so far i've been really lucky with it and not reacted. i've had reactions to tramadol, pethadine, methodone and morphine - i have massive seizures when i react. i think the reason i can tolerate PF is because there's such a small amount of codeine in it, comparatively.
hmmm.... medications that can treat nerve pain. i shall take that idea along to my GP on friday too. and my rhuemy. i just looked into it. exciting! thanks heaps.
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celebrex: the way i understand it, it's a very different drug to mtx. mtx has kept my swelling down a bit over the longterm, but celebrex is like a day to day type thing. it did eventually burn a hole in my gut after 10 years or so of taking it, but they were GREAT years.
it worked well for me. it certainly helped with the swelling. i was on 200mg daily, which is what i think was the upper limit. i took a break from it and in conjunction with the doctors, have decided to try 100mg/daily with nexium for the gut.
also it's apparently one of the more gentler NSAIDS for the gut. i wish you the very best of luck with it!
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i use nexium (esomeprazole) instead. it's specifically for gastric ulcers caused by NSAIDS.
here's an interesting paper comparing them all:
http://www.webgerd.com/Abstract27.htm
so good to hear you've had great success with prilosec!!! nexium has been pretty kind to me too.
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Can you do any of the biologics to help slow down the degenration? I started Humira several months ago and it is pretty awesome.
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biologics aren't an option for me because of an infectious disease and heart problem i have. a bit of a drag. luckily the ID isn't anything serious, it's a big staph infection i picked up in a hospital from a surgery, but i does come up every now and then so it's certainly active. blah blah blah.
so glad to hear the humira is being awesome to you! SO HAPPY FOR YE!
Reply
The only non narcotic (opiates or opiods) drugs are NSAID's and medications that can treat nerve pain. I am taking Neurontin for my fibromyalgia and find it quite effective. I hope you'll get to see an orthopedic doctor to help address the osteoporosis, that is just awful. I think they do have some effective treatments for that now however.
Getting a referral to a pain clinic sounds like your best option. Good luck.
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hmmm.... medications that can treat nerve pain. i shall take that idea along to my GP on friday too. and my rhuemy. i just looked into it. exciting! thanks heaps.
bests!
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