I suppose it was only a matter of time, but that doesn't make it suck any less.

[pyrric]

An MRI a few days ago has revealed that my faithful MS med of the last eight years[1] has pooped out on me; according to the radiology report of the scans, I've got a "significant" increase in lesion activity in my thoracic and cervical spine and a couple of new lesions in my brain. Thankfully I still feel mostly fine; the most obvious thing I can

Comments

[termofart]

Well, fuck.

I much prefer your cunning plan.

Fingers crossed the the side effect skips you.

[pyrric]

I prefer my cunning plan, too! Alas. Thanks for the crossed fingers, though!

[vwbug]

I can't believe it's been eight years either. That's kind of amazing. Though, this news sucks beyond the telling. I'm sending you good thoughts and many wishes of good drugs that don't cause too many problems.

I'm thrilled you're in a wonderful job, though. How wonderful that must feel!

[pyrric]

Very belated thanks for the good wishes! I appreciate it. And yes, the good job makes the crappiness of this kind of thing much easier to deal with.

[maudlinkitty]

I can't believe it's been that long, either. You're so amazing, it's hard to remember that you're sick. I know you'll get through this like you've gotten through so many other challenges, with grace and strength, inspiring others as you go. Good luck with your decisions and your medications.

Love,
~kat

[pyrric]

A few days ago I came across the "Kat M. thinks I'm awesome" T-shirt you made for me, and I smiled and smiled and hugged it to myself and smiled some more.

[brigid]

I had no idea you were a lefty. (i swear i think that comment comes from the sort of illness-bad-news-thick skin i've developed over the past 4 years)

Really though, my social ineptitude aside, I am sorry that after 8 relatively uneventful years healthwise that you have to go through this now. i've got my fingers crossed that you'll get back onto the path of your cunning plan one way or another.

apparently interferon is used for aggressive masto cases i just learned, though a lot of the people on it refer to it as chemo...which it's not eh?

[pyrric]

I had no idea you were a lefty.

Hah! Awesome. And thanks for the good wishes.

I've heard interferon referred to as chemo, too, but there are lots of different kinds of interferons (alpha and gamma, etc.), some of which are given IV, so maybe some of those are actually chemo...? I dunno. The kind I take (beta 1a) is definitely not.

[atalanta]

I am also hoping that you escape most of the side effects while getting all of the benefits of one of these new drugs. Do they tend to affect everyone about the same?

The slow and mild progress so far bodes well too, right?

I can't believe it's been 8 years either.

[pyrric]

The slow and mild course so far is definitely good news and, in as much as these things can be predicted, bodes well. I'm trying not to lose sight of that. The meds do tend to affect everyone about the same, though for most people the flu-like symptoms tend to diminish over time. I've had that happen a small bit--I still feel crappy, but for a shorter period of time.

Hey, I'll be in town to see my parents and free the 20th and 21st. Any chance you guys would be around? I'd love to see you all!

[atalanta]

Yes, we'd love to see you!
I have to work Friday (while Sean has Callie), but dinnertime works, or probably anytime Saturday.