semi update

[pianoaunt]

Kimberly is deteriorating pretty rapidly. She has fallen 12 (?) times since she came home Tuesday night from the hospital. She's 300 pounds, so when she falls it's a big deal because my brother has to call someone to help him pick her up. She has no strength to help them get her back up off the floor. Hospice wasn't doing a damned thing for us

Comments

[delfinodigrazia]

Maybe spray bitter-apple on a stick? I know you obviously can't do that to every stick in the backyard but maybe if you put one in her path, it would turn her off to sticks? Other than that, I'm not sure what you could do...

Watching someone die is .....well, undescribable. It's beyond hard. For me, it like tainted my memory of Thomas. When I think of him, I picture the sick him..although, he was sick for more than half of his life so it might be different in your case...I hope it is. That is also why I hate open caskets....whenever I go to a wake of someone who has an open casket, when I "picture" them later on, that's the first image that comes to mind.

You've been in my thoughts and will continue to be...as will the rest of your family. Please remember to take care of yourself...I worry about you getting run down.

I know I've said it before but I want you to know that I am here any time you need to talk.....24/7 (for real). Please don't be afraid of waking me up.

Love and prayers...

[lala2]

Wow...it sounds like things are incredibly hard with Kimberly right now. I know this is a difficult thing to even think about...but have you considered hospice? I know that Kimberly is very ill, and if she is indeed terminally ill (gosh I hate to even say that...but I believe you said she was) then hospice can be incredibly helpful. Just something to think about...

I'm glad you're eating a bit better (even if it is only when you're with your hyper aware niece...hehe) but I wonder if you're stil eating far to little...and if that might explain the wooziness. You are obviously doing a LOT right now, which means you're burning more calories...so of course you need more calories. I am still pretty worried about you. I am afraid the critical level of your illness is getting lost in all of the other really critical things that are happening t you and your family.

I wish I lived closer...I SO want to help somehow! For now, please know I love you and think of you ALL of the time.

[pianoaunt]

I'll respond more later, but wanted to just say that yes, we've got hospice care. The company we had did NOTHING for us...they SUCKED so bad. My brother called the doctor yesterday, and the doctor gave him the name of a different company. The one we've got now is MUCH better...they're coming in 5 days a week (although I'm not sure how long they'll stay for each visit), and they'll bathe her twice a week.

[miafedup]

I just can't believe it. I was a hospice volunteer and those people are a disgrace. I'm happy you are going to another agency and I pray she gets the care she needs.

[lala2]

I SO agree with you, Jax, those hospice people ARE a disgrace. My experiences with hospice (which are forutnately limited) were amazing. My qaunt was actually at a hospice facility and it was so nice. She had a nice, homey room and they were very attentive to her. They were also incredibly supportive of her family and friends. This is what Kimberly deserves and I hope you have found it now.

Love you, Katie m'lady. :)

[lala2]

Hi Katie! I hope things are going okay...I miss you but I know things are incredibly busy for you right now. Post when you can, and in the meantime, know I am thinking about you!